update on my gastroparesis

Well it is almost the new year. I have adjusted to the domperidone finally. My gastroparesis is doing better for the moment. I have not had nausea in about a week. This is almost like a new feeling for me after being sick for a year. It was a rough adjustment and I did not think my body would accept the medication for a bit and I had to stop it and restart it a few times but it seems to be a success for now. I am taking it three times a day and no palpitations or chest pain any longer.
I had an awesome christmas. I will be getting a puppy soon and can not wait to meet him. He will be a family puppy. His name is Sam. He is four weeks old right now. I have seen a picture of him but I want to hug him and cuddle him.

Gastroparesis fun continues update on teh endo and cp front as well

My CP is just normal for me so there really inst an update here.
My endometriosis is well controlled right now with the lupron injections I am getting every three months. I am going to be having a bone density scan to see if I will have to come off of lupron for a while to allow my bone density to build back up. I am not sure what will happen if I am forced to stop thee med however I will do what is needed to keep myself safest and healthy.

the gastroparesis is still keeping me on my toes and a bit uptight but I am doing my best to get through it. The new medication they have me on has begun to give me some side effects so it was decreased to taking it three times per day rather than four. I am hoping that this is enough to allow me to remain on the med for a while in order to keep my body nourished and healthy. I have not had much nausea and no vomiting since the med has begun to take effect. I pray that I will be able to remain on this med rather than have to attempt a feeding tube. the thought of a feeding tube reallly scares me however so did starting this medicatin because of some of the side effects. I had an awesome birthday. I was able to stay awake and spend the whole day with family. I am able to eat some solid foods now however I still often choose shakes and luquids over solids because of fear of the pain and possible vomiting. I do not know that I will ever return to my normal self and not think before I eat things again. This has been going on for almost a year and I have been through so much pain weight loss nausea and vomiting that eating has become very difficult but I am getting nutrition with the shakes as well.

Another new diagnosis

I have been diagnosed with another condition since august. this one is called Gastroparesis Or GP for short. It is a condition where  my stomach does not empty the way it should. It empties too slowly. This causes pain nausea and severe pain at times. This has resulted in many hospital trips this year for me. This condition is by far the hardest one for me to manage and get to a point with that I am feeling good. I have for the moment gone to taking all calories and protien and nutrition through luquids. I have been making shakes for the last three days. I am on a medication called domperidone for this as well. It is not FDA approved in the united states but It is one last option before I face the choice of placement of a feeding tube which may or may not be a permanent thing after it is placed.
I am still struggling with this right now today but I have had three good days with my GP this week and I pray that the streak of luck continues. The doctors seem to believe that a viral infection caused my immune  system to attack and damage my vagus nerve aka the nerve that controls the function of the stomach. I have not been on the new medication long enough to know weather it is going to help or not yet but so far it is not causing any significant side effects for me. The challenge is going to be remembering to take it four times a day. I tried all other methods of treatment for the GP I tried a medication called Raglan for this as well and it was very unsuccessful. I had many of the neurological and other side effects of the raglan. I started to develop the condition called tar-dive dyskenisia. This is a movement disorder that is caused by the medication that can become permanant if the medication is continued long term.
I have lost 60 pounds since around this time last year. There are many out there who are more severe with GP than I am and for my less severe case I am thankful but the pain is so intense sometimes for me it is unbearable. I am supposed to limit my pain medication intake because the medeications to help control my other chronic pain conditions slow the digestive system further which thus increases pain in my stomach.
It has been an incredible long year and I have learned that you find the strength to go on even when you no longer think you have it in you. I truly believe in the saying you never know how strong you are until being strong is all you have left. this has been a very scary year for me I have felt like I was dying at times due to not being able to hold down foods or fluids for sometimes days and up to a week at a time and this yes resulted in hospital trips for rehydration. I have been to the point where I was begging the hospital to just place the feeding tube and let me keep it because the pain was so bad but I felt so sick from not eating or drinking anything or when I did it coming back up.
This has been very confusing for me because I am one to listen to doctors and my body and their message was always no matter how sick you are get nutrition well this GP stuff is very different. I have days where I have been on clear liquids only I have days where I am on a full liquid diet with shakes and all fluids I still have some days where I can eat however it is not the normal amout to maintain nutrition. the body sends and recieves very mixed messages with GP. It feels hungary sometimes but then you put food in and the pain intensifies so its always a conceios choice of weather to eat or just take in nutritionallly balanced fluids like ensure and boost or shakes that I mix with protien and nutritional powder and other fruits and veggies. I will post more on GP in the future I have not been blogging much as no one really seems to be following

My life continues with many good things going on but still many medical issues as well

I am not sure where to even begin this blog but I am going to shoot for the goal and give it my best shot


As stated in the title there are many positive things going on in life right now both medically and just with life in general. Here is my list for the life in general ones

• I am learning independent living skills with some very nice ladies through the state of Maine and also the IRIS network. this is a group that works with people who are blind a visually impaired to help them achieve goals in life and independent living skills.
• I am learning to cross the street on my own with the use of hearing for the most part. this is not an easy task but it is a goal I want to achieve so I am going for it.
• I am thinking about taking some courses through a college that is offered to the blind and visually impaired. Very excited about starting this however I am not sure when I am going to begin. I have to be absolutely sure that I can devote the time to the courses so I think it may be a winter thing

The good things on the medical front

• My endometriosis is pretty calm for the most part with my treatment plan.
• I have been able to completely stop one of my medications for muscle spasms
• I have started receiving case management services as long as my insurance will permit it to begin.

that is the positives for me with my life for the moment however I am not sure that I have blogged about my most recent medical battle. I have been dealing with pretty persistent nausea and stomach pain and vomiting since December and undergoing a pretty significant number of diagnostic testing to determine why. thus far I have had these tests done

• Multipule lab tests
• upper endoscopy
• colonoscopy
• MR Enterogrophy  A test whee they make you drink barium then scan you intestines to make sure there are no blockages or inflammation. Those scopes unfortunately don't get all the intestines in there checked out. 
• the most recent test that was done is called a gastric emptying study. with this test they have you eat an egg toast and drink water.  the egg has a tracer in it that allows then to see how fast the intestines empty. they take seven five minute images and they want at least 90 percent of the food gone in the five hour time period. 

It has been a long however productive seven months. I am not sure how many readers I have but I hope that someone will come across this with similar medical issues and know you are not alone. Oh and on the cerebral palsy end of things I have gone from the fore arm crutches to a walker which for me is much easier.

update for post gi and endomtriosis

I got a free ticket from gastro for six months. I go back in December for just a routine check in my endometriosis is still hanging out i am going to remain on the medication regiment that I have been on which is the lupron injections as there is no need for surgery right now I also have the IUD for the endometriosis as well which is also going to be continued for as long as possible hoping it stays for the five year mark for me. Other than that there isn't much more to update on.

Its been a while

I have had a lot going on latley and have been pretty down and out with random viral sickness since december. Right now I am dealing with a UTI and upper respiratory stuff hoping this is my last battle for a while outside of the daily battle of the endometriosis. Sorry it has been this long but not too many seem to be reading latley any how so Im gonna keep this shoret. I have a Gastro appointment today for follow up after my severe virus in December. Hoping that I get the all clear after this one.

Endometriosis awarnes month

Welcome march and Endometriosis awareness month 

Me in pre op for second lap surgery I have a heater blowing air into my gown that's why I look huge. This is the surgery where I had my left tube and ovary taken.

This is the injection that I get once every three months to help control my pain and the growth of the endometriosis. It is called Depot Lupron

A poster I made to raise awareness

another awareness poster

Ne wearing a yellow shirt in recognition of endo. 

I suffer from endometriosis and it has changed my life in many ways. It is a very painful desiese to live with both physically and emotionally. even with treatment I still at times have daily pain from endometriosis and other conditions that go along with it like chronic pelvic pain. It is exhausting to have this condition but those of us who have it fight to get through each day and to accomplish everything that we want in life. There are millions of ladies with endometriosis. Endometriosis is the leading cause of infertility in females yet very few people hear about it until  they are diagnosed. 

so much going on so little time in life

I have been really in a downward place lately. I have been getting a lot of dreadful news. lately. I found out that I am not a candidate for any further treatment on my bladder. I can not have botox in the bladder because it will most liklely cause urinary retention resulting in me needing to catheterize myself for several days. I can not get the Inter Stim implanted because of my cerebral palsy the electrode placement would be extremely difficult for the urologist. My medication was increased to fifty milligrams to see if it will help a bit more. I am hoping that it brings some relief for me.

I also had a pain management appointment for an evaluation for trigger point injections which I was not evaluated for. They pain management ream reviewed my chart and decided that i was not a candidate for the injections either. I was never given an evaluation for anything. they doctors told me that there is nothing they can offer me so it is looking as though I am officially going to be a chronic pain patient until more treatments and trials for my conditions become available.

I have been trying to get new sneakers to put my braces in but that is proving difficult as well. My primary doctor has been trying so hard to get me the information I need for a prescription and also feels that i would be better off following up with my orthopedic who did the surgery on my foot since he knows the general round with orthopedic stuff. I spent yesterday getting in touch with him and discovered he is in Brunswick and he is seeing me in January. I have to have a Letter from my primary doctor stating that I need to see him for my health and if i do not see him it will be detrimental to my health. the reasoning for this is because it is over thirty miles to get there each way and maine care does not like to pay for long millage reimbursement trips if they can get away with it. My life has been a total chaotic mess lately.

It has been a very long November

Hi To those who read It has been a very long month already. I am still waiting for My TENS unit. the doctor was supposed to send a written prescription with the paper work that she signed. I found this out after leaving the PT three messages with no return communication I finally called my doctors office and asked if they could call over to the pt center and find out what was going on because I had called with no return information.
I have also been dealing with alot of grief from the pharmacy who is supposed to order my lupron injections for my endometriosis. I was finally able to find out why the insurance claim has not been going through. I however had to call my insurance company myself to do so. they have been billing insurance for a thirty day supply of lupron when the injections I am getting are for three month use. I called the pharmacy and told them they needed to resend the insurance paperwork for a three month supply however they did not do this Wednesday and they had plenty of time because I had spoken to them and gotten all information by noon Wednesday. I called on Thursday morning which is when i found that nothing had been processed or even sent to my insurance for approval so I called the pharmacy and told them that they needed to speed up the process as my appointment is scheduled for Friday at noon. I also told them that it is ridiculous that it took this long to get my medication as i was due for my injection the first of the month. I will not be using the pharmacy service again I will go through the hassle of getting it from my pharmacy and bringing it with me every time it is needed which wont be for at least a year thank goodness.
On the CP home front I have been working on getting new extra depth shoes for my braces because the ones I have are getting really worn out and uncomfortable however I need things to calm down a little bit before i schedule teh appointment for the face to face consult that is required to get the approval through insurance. i am going to have the doctor at new England Rehab that I see do the prescription as he knows exactly what he wants me to have for a shoe. i think that is about all i have to report right now.

no pt today

I was supposed to have pt today but my tens unit did not come in so its a no go until it arrives. I am hoping it is soon since right now this is one of few options left for me according to pain management as you will see in my previous post. I have never been treated so bad as I was with pain management. i am hitting into a major depression right now because of how he treated me. he made me feel like nothing I said mattered and that I was just saying things to try and get attention. He did not believe me. None of his other colleagues are willing to help me either they say that the injections I was supposed to be evaluated for are not an option even though the doctors that were qualified to do injections never saw me they pushed me down the line and left me with Dr full of u know what. thankfully I have a Primary care doctor who will help me and will fight for me. I really need her for the next few weeks or shall I say months as my GYN will be on leave soon. Personally she should already be taking it easy in my book and enjoying her last few days before a lil one enters the world. I am so happy for her I can not wait until February so I can see lil one. We do not know what she is having yet but she deserves it she is a wonderful person and takes the up most and greatest of care of me./ I can never thank her enough for all that she has been through with me.
We had a transportation change over here in Maine which has not gone very smoothly and i have really been struggling with it and we were talking about it and My GYN told me that every time she hears about the problems with it on the news she instantly thinks of me. I do not cry easily but nearly did when she said that. It means so much when A medical provider takes in every aspect of my confused and crazy life. So many just fail to see how transportation issues affect me and hey do not understand they choose to get angry and frustrated. I have been told so many times if I was more than fifteen minutes late not to go to the appointment but my GYN does not turn me away. I do not know where i would be without her and no words are ever going to be enough to thank her.

An update on appointments

I had pain management appointment yesterday It was the most horrid appointment i have ever been to. The doctor that I had was cold. He never did an exam or anything. He basically told me that was no further options for my treatment of pain because I had done pt and all other things he would recommend. I wrote him a letter that I will share here However I am editing out his full name and he will be refereed to as DR H

Dear heather,

I need to keep you up to speed on my pain management appointment he said he was sending a note however I doubt it will have full details of what happened. I know how most doctors notes are vague and they say what the doctors or doctor want you to know. I went to my appointment with hope that there were more options for me. I gave a very in depth description of everything that I have tried and all of my treatments thus far.

Dr. H came in and introduced himself and told me he did not understand why I was sent to the pain Center. I explained to him that I had been advised by my OBGYN that trigger point Injections could be beneficial and he told me that he did not do injections and the doctors that did the injections reviewed my chart and did not feel that they would be beneficial. I politely asked how they could decide this without trying anything. I told him that only I could tell if it were going to help and only if it were tried. He basically told me that there was no way that they were being done. I said ok well what is the next step what are my options? He told me he had nothing to offer me. Dr h than proceeded to tell me that they only treated spinal and joint issues which I know is not true because my OBGYN has told me she has sent patients there to DR O for the injections.

Dr. H said that the injections were not used or may not be approved for use in my situation. I know that this is not the case because I have been told by the urologist that I have pelvic floor dysfunction and trigger point injections are often used for that. I came out and told him directly I did not understand why the doctors who do the injections did not see me to explain why I was not a candidate. He then began basically telling me that my OB needs to treat my pelvic pain and Urology needs to treat my urinary pain. I told him that the only other option that the Ob feels that I have is hysterectomy which I do not want because of osteoporosis and the fact that I am a fall risk because of my cerebral palsy. He then asked me why she would have to take my ovary to fix some of the issue. I told him that the ovary produces the female hormone um oh I know that was his response. Mine was um Endometriosis feeds off of estrogen so in order to maybe stop it the ovary needs to be taken. His response Oh you’re talking about the endometriosis. I then told him that Uro had pretty much exhausted all options as well and he said to me that people are most often referred to him after exhausting all options. My response was is that not how it is supposed to be. He said well we can only treat pain two ways and that is medication and Cognitive behavioral therapy.

I told him I had been taught how to do the CBT for my pain and depression through my counselors. He explained to me that it was not the same. I asked him to tell me about the CBT he uses and he told me they had a course or something there that incorporated exercise with the CBT however he didn’t feel that it was an option because of my Cerebral palsy and he did not feel that I could actively participate because of my limitations and the fact that it is in group setting not one to one.

I am lost right now. I feel like I have no options. I am so confused how three of the providers on my medical team can say that these injections would be beneficial and then I am denied the opportunity to try them. I have been in tears since leaving today and I am writing this because I cannot talk about it without crying. I was so hopeful at the possibility of less pain and i honestly feel like this doctor’s goal was literally to put me to the point of having no hope at all. Dr H was very cold. He never even did any form of exam. He never touched me and I do not see how it can be considered a valid evaluation and exam to see what he can offer if he never even checks anything. He only read through my records and told me that I don’t have cystitis because my bladder biopsies were normal.

i told him that I had been told about botox and he told me that the urologist did the injections into the bladder. I have been told by Jon that they do not instill or inject anything into any muscles or into the bladder through a catheter. That is pretty much all I can remember. He told me that there was no need for me to return for my second follow up that was scheduled for November 13th 2013.

I am very confused. I am losing hope. What more options do I have I feel like this was a huge let down and it was one of the last steps to relief. I don’t know what to even try next or ask to try; DR H told me that I was a self referral. Is this because I asked you about the treatment? i had it recommended to me from My OB and she told me to ask you and have you look into it to see if you felt it would be beneficial since you need to do the referral process.

I also want to say thank you for being an active and caring part of my medical team. I am only writing this because I want it on record of what my point of view was and how I was treated. I feel that I should be able to make choices about my medical care not have doctors tell me I cannot have access to a possible treatment for my pain. I am going to ask you flat out are there other options for better pain relief? I know you are not a huge fan of narcotics and neither am I my desire is to not have to take them but that is not looking too promising and I need to be able to be a more active participant in the life I am supposed to be living. Right now I feel like I am just watching it pass me by. It is so hard for me to be interacting with my nephews and niece and they are pretty much the biggest part of my life.

I also recently had someone who I thought was a good friend and support  for me tell me that I was choosing to lay down and die because I have been telling her that I cannot watch her daughter. I got lectured about how i felt so much better when I was active. I told her that I had been trying to get 20 minutes of exercise a day and she said that I was not doing enough to help myself. I am just tired of not being able to do what I want to do . I know being active is important but when you only sleep for four hours at a time it’s not easy.

Thank you for taking the time to read this and please keep it on record. I feel that this doctor’s visit is thus far the worst treatment I have had. I am not putting Mercy down as a facility. Most people I have met show nothing but kindness and compassion but this is just not right.

Jennifer Berry



I saw my primary care doc AKA Heather today and I gave her this. she does not understand how this is happening. I told her that I was not returning to that facility ever again. At least not the pain center. She also told me that I was not a self referral because she refereed me on my OBGYN recommendation  It was horrible and I don't ever want to relive that again. Heather is contacting my urologist to see what some other options might be. I am praying that it is not another surgery I am currently also being treated for a sinus infection which is the main reason I had the appointment with her 

response To amy on her comment On my pt post

I am really struggling with it however I have two very supportive doctors my GYN and my primary care provider really keep tabs on me and are an awesome support team i also have my mom who knows how afraid I am of having a stroke now that my dad had his last June. He has made great strides since having his but I am deathly afraid of having one with having the cp and all already it would make things a million times harder.
Also thank you for the support you are giving me it means alot and I really need it do stick with this goal. I am struggling as I just increased my time on the bike to 20 minutes. It feels like it takes an hour especially with the back pain I am having which is in turn triggering the pelvic pain. I am awaiting a call from pain management to see if there is a better path they can put me on for managing my pain so I can continue to regain my quality of life. My legs have been bothering me alot since starting but its just another thing to push through.
I have also been keeping a work out journal that I will begin sharing here soon. I need to type it out so it may take a bit but i am going to share because it is another tool that is keeping me going and I want to be able to look back on it in the long term. this blog was originally for my cp journey but it has became a very good venting and motivational tool for me and I am so grateful for the support i get from my readers. I need to track down the e mail with the link to ems blog again I have not been able to find it recently i know I saved it though I hope she is doing well  hoping to post a picture at teh begining of each month also starting in November but we shall see how well that one goes lol

PT is really on teh ball

I called my primary doctor this morning to let them know PT would be calling them and they had already done so. surprised me for sure usually they take their sweet time on these things. Now to wait and see if insurance will approve the unit lets hope so. I really just want my health situation to give me a break for a while but i do not see that one happening in the near future. I am also back to having the severe dry skin on my feet which has broken open and is very painful but I am putting the medication on them to help heal it. I missed biking last night because of my feet but I am going to do it tonight. My primary doctor recommended weight loss to help with the pain so I have to put fourth my best effort and do the exercise in order for her to see how difficult loosing weight is for me .

Not the greatest news from PT

The PT that I have right now does not feel there is much that can be done with my low back pain. I told her about all of the conditions and she was unsure of what to do or try so she went and had a quick meeting with a PT who does pelvic floor work and they agreed that the pain was not related to an injury or mal alignment but due to nerves that have been over active because of the pelvic pain.  I was kind of expecting this but it was still really hard to take in. Endometriosis and my bladder condition and now the pelvic floor dysfunction have taken so much from me. I thought that I would get relief once I got a diagnosis but the endo diagnosis lead to the Ic diagnosis which then lead to the pelvic floor dysfunction diagnosis. I really truly feel like nothing but a list of diagnosis's.

I am becoming so lost in pain and sadness sometimes. I wanted so much in life before my pain started and now all that I ask for most days is to be able to feel well enough to do at least something each day. I do have days that I can not do anything and I cry alot on those days because I know that I have responsibilities that I can not accomplish.  My primary doctor recommended weight loss to see if it would help with my pain level so I have been working so hard at trying to loose weight. I have stuck to it since the end of September I have missed one day completely because I laid down to let my stomach digest my dinner because i had really strong IBS pains after dinner and woke up at 200 the next morning and said oops was not supposed to fall asleep. I also cut one night short due to spasms in my back and belly

 but I am doing the best I can. I have not sen any changes yet but I am hopeful that i will. doing the fifteen mins a day makes me really tired but it is  something that i need to do and I also need to try and increase my times on the bike. I am going to start using the table bike again for my arms to see if I can stick to thirty minutes fifteen on each machine.

more physical therapy for me.

I just got a call from teh physical therapy center to schedule my pt Eval for my back. My doctor put me donw with a diagnosis of low back pain which I have but failed to tell them about all the medical conditions i have that could be contributing facotrs in my pain these being endometriosis pelvic floor dysfunction cerebral palsy and the IC. They wre going to set me up with a male pt until I listed out these conditions and told them I was not really comfortable having a guy and discussing these issues. they agreed and put me with a femal thankfully.
I am in a few suport groups for my endometriosis and I posted about being uncomfortable talking to a male about my issues and somone wrote a message back to me about how she is so tired of people being embarrassed about talking about endometriosis and todl me I should be telling everyone I meet basically about it. I was less than impressed and left a reply to thart message saying that I was refused treatment by a male pt due to these conditions and also rificuled by a pt in school telling me that my period was a normal part of life and that i was just tooo lazy to want to do my physical therapy. I said that I apologize for not wanting to be ridiculed or risk reliving anything like that. its awesome how soone who does not know the situation passes judgement. i do not pass judgement and only suport others with their choices even if I do not agree i may caution them with an experience that I had if I have tried the teatment however I remain positibe when doing so. sorry for writting about this here but maybe just maybe somone will get it I am lost and just needing to vent I go to these groups for suport thinking that they will understand and now just wind up feeling judged.

changes changes changes

So many changes happening lately. I am working reallt hard on doing cardio every day. I am six days in tonight. It is totally kicking my butt however I know if I do not try to loose weight I will continue to have low back pain and other issues so heres to hoping it works out. I had more padding added to my braces the other day to keep my skin from breaking down. The changes to teh padding in my braces seems to be making my toes on my right foot go numb. I am not sure what is pushing on my to cause this but I have not been able to wear my brace on my rigt foot much at all today due to this. I am also awaiting a call from a pain doctor to see about getting trigger point injections in my pelvic floor to see if it helps my pelvic pain . I will keep you all up to date

change in medication yet again frustrating

I am really uncomfortable since yesterday with my bladder so i called urology to see if the urodynamics testing was a possible next step however they are not sportive of it even though they gave me the information about it and I feel it would have been a better choice they are pushing a new medication on me so this is the route i will take seeing as it is the only one being offered. I just wish he would have just outright said I will not do uro dynamics until you try this medication rather than giving me something that I feel would be more beneficial and making me feel as though I am not able to make my own choices in medical care just frustrated and uncomfortable and waiting for a prior authorization for the med yes it is that new and the rule is Two other OAB over active bladder drugs must be tried well I have done this with ditropan and vesicare neither are effective.

Had a very bust week this week

I had three appointments this week. On Tuesday i went to New England Rehab hospital for brace clinic so they could see how things are going with my AFOs. They do not have many concerns just a few with callouses that are forming on my feet and the fact that my feet are extremely dry. They told me that I need to work hard on keeping my right foot in a neutral and straight position when I am resting with no braces on as they do not want a contracture to form on the right side. If this happens it would mean another surgical procedure. I go back in sic months for another check and hopefully when that happens I can get some new sneakers. I really need them. My sneakers have seen better days for sure.

Thursday i went to see my OBGYN because I had alot on my mind with medical stuff that was not settling well with me so I needed some things explained. the stuff I needed explained was urology related but she is so good to me that she will take the time to explain things in terms that I can understand. She is also going out on maternity leave until  January so I wanted to see her again before she left to have my IUD checked and just kind of a once over kind of thing. I go for my last lupron injection November 7th then i do not go back until February some time provided everything cooperates. Heres to hoping that happens.

And today I had an MRI of my lumbar spine because I have been having alot of low back pain. I always have low back pain with the pelvic pain but this pain is different It is making it so it is hard to stand from a sitting position and hard to turn over in bed along with other difficulties in daily life. Usually if the back pain is related to the pelvic pain if i get the pelvis to calm down the back will but it is nearly non stop.

I will be making an appointment soon with my primary doctor to let her know what has gone on with gyn and let her know that my ob wants me to look into trigger point injections for my pelvic pain and also to get a flu shot they also mentioned a test called uro dynamics that my gyn feels would be beneficial for me to have so it is going to be busy for me for a bit but for now I am taking a break Heres to hoping thing calm down for me soon.

the craziness continues

I am not sure where everyone has gone but I miss having comments to read. I hope that you are all ok and nothing serious is going on I miss Emma and malayna I hope that things are going well/ Any how an update on me. I am currently taking lupron again for my endometriosis and also trying to get  my bladder condition under control/ We are discussing more testing on my bladder along with a procedure that uses acupuncture to possibly help control the pain also there has been talk of surgical intervention the device is called the interstin/ It is basically a pace maker for the bladder so that it stops the nerve impulses from becoming overwhelming, I also have had an appointment for low back pain and I am going for an mri Friday well I think that is about it for now/

end of summer post

I have not had much traffic or comments lately so I haven't been updating as much. I hope that my regular readers will begin to show themselves again I miss al of you. any how this is my end of summer post. I have not been feeling well at all for the past few weeks. I have been having alot of lower back pain and currently also have another urinary infection. I am supposed to see urology on Monday if I get a ride seeings how our transportation to medical appointments for the disabled has just recently changed hands so it is not going so smoothly. I will also be calling my ob to have her do a full once over with things just to make sure the IUD is ok as I am still having pelvic pain and right sided pain It has been nothing but a really rotten time with pain. the spasms in my legs seem to be fairly well controlled with the Zanaflex I am taking so I am very hopeful that comfort will continue. I and my family were blessed I welcomed a new cousin this month he is such a peanut.