Wednesday, August 31, 2011

The Er loves me ha ha not really

ha d to go to ER again on friday because of pain. I was there for a long time but got my pain under control. i had my appointment on monday at the clinic but ended up seeing a nurse practitioner because the ob i was suposed to see had an emergency so they just basically gave me more meds and told me to come back on the 15th of september so ive been laying low again.
i am so upset because I could not make it to october like i wanted to so that i did not have to see different doctors it is so hard when that happens and it frustrates me alot. i feel so lost right now and so confused i do not understand how my pain increased so rapidly. this desiease is so unpredictable and painful it is so draining Im just feeling really down right now But i can still say that i will be ok This desiease may get me down sometimes but it will not keep me there forever. For any one who does not know about endometriosis you can comment here and i will answer questions as best i am anle.

Thursday, August 25, 2011

very frustrated right now

the cream is helping which is a good thing but now I am spotting on my birthcontrol which isnt really a good thing and i have been in pain now for nearly two straight weeks. I made an appointment to see an OB on monday i dont know who it is but something needs to be done to help me weither it be until october or whatever i dont know i just need it to go away for a while again. i have not wanted to get out of bed now for over a week and it is frustrating me and everyone around me who hate seeing me like this. I am not sure what is going to be done but we shall see if anything im not really getting my hopes up here at all. Very nervous and just wish my ob was back already i hate this well im going to go take my daily meds and rest since i feel horible i will update when i get back on monday provided the weather cooperates

Tuesday, August 23, 2011

finally got the cream yesterday

I finally got the cream i need yesterday over a week after my appointment I have used it three times and already noticing a difference in my foot. thankfully. I am not looking forward to going back in on the 14th of october I dont want to discuss surgery at all. I will keep updating as things progress with my foot and if any other interesting things arise

Saturday, August 20, 2011

update on the foot healing process

I think i wrote this before but Ill start from the begining. I am suposed to be using a cream called urea on my foot to help break down the dead skin that is calloused and help promote the growth of a new layer of skin. When i went to drop the perscription off on the 15th which was the same day that i had the appointment they said that they had to fax the doctor because it required a PA. I called the doctors office and spoke to the Doctors wonderful clinical assistant who said she had not recieved any fax but would start the prior authorization process by filling out the needed form. I called in again on friday to find out what had been decided and the PA was denied because my insurance is only willing to cover a 20 percent cream rather than the 40 that was perscribed. So the wonderful assistant had the doc change the perscription strength and re send the perscription to my pharmacy. i called to see if they had gotten the fax and luckily they had but also found out that the medication is not commonly perscribed so they have to order it but as far as I know as of monday i will finally be able to start treating my foot with the medication the doctor wants me to use for the next two months. i find it amazing what people have to go through just to get the medications they need because of insurance regulations it gets quite frustrating.

Friday, August 19, 2011

a wonderful day yesterday

I had a wonderful day yesterday. My best friend came up from virginia and when she got to maine we went to see my other best friend who is currently in a nursing home because she has severe cerebral palsy. I saw my niece and nephew again my friends children from virginia. over all it was a wonderful day I enjoyed my time with my two best friends and know what a true friend will do for eachother .

Monday, August 15, 2011

ugh doctors are frustrating

Well had the foot specialist appointment today. It is not a very happy appointment ending. He does not know what is going on with my foot and he said that i may need surgery to lengthen my heel cords. Ok here we go with the blog turning tides back to the cerebral palsy aspect of my life. I thought that after i stopped growing that I did not need any further surgeries. but he did say that dreaded word I am really starting to hate the routine of doctors and wanting to cut into me I am so frustrated.
he gave me a cream perscription for my foot and I have to go back in two months. the cream requires PA which means i have to wait for that and then more than likely wait for the medication to be ordered so ya it will be a while before i get to start that. Teh doc that I see is only in on monday and fridays so we shall see I will call in on friday and see if anything has been done.

Wednesday, August 10, 2011

appointment for my foot on monday

i got the call On monday to schedule my appointment for my foot I go there on the 15 of this month to have it checked out. it seems to be doing much better and healing now. I hope they dont need to scrape it down or anything but we shall see. I am not feeling well right now but I am going to try and wait it out to see the ob abd yes that is despite my doctor saying to call and get an appointment well i have to go for now

Saturday, August 6, 2011

my week with the fam and update on things

I had a really good time with my aunt uncle and cousins. I had my puppy too. We just hung out and stuff really not too much action but we did go to a few stores. We went to hannaford wal mart and big als. Everything is so far to get to from where they l8ive lol but the scenery was nice. I saw BIW and got to see pieces of the new destroyer they are building right now.I came home yesterday and am glad to be back though I missed my other dog and mom and dad.
As far as the foot goes it is getting a little better but not much change. I am still waiting to hear from newengland foot and ankle for an appointment to see if anythign needs to be done with it because my doctor said it is too large of an area for her to deal with.

Tuesday, August 2, 2011

I did have my docs visit yesterday for ny knee and foot and a few other issues. I have tendonitis in my knee. My foot has really bad skin breakdown that is gettin worse rather than better. I have had the skin breakdown since I had my serial casting and the orthopedic said that it would go aay with no treatment I think that was around seventh grade or so for age purposes and it has bot gone away at all it has gotten worse so now I have to go to newengland foot and ankle for the issue. I never showed it to any doctors because i did not think it was a huge deal till it just got to the point of being uncomfortable.
she also told me that she feels that i need to see an ob between nw+ow and october but I am not sure when i will be making the appointment. She told me that I am at a high risk for infection in my foot so I have to keep a close eye on it and keep it cobered with bandages and cream well i think that is about it oh and i will be sparse until at least friday I am visiting family in dresden Mills from now until Friday having some me time with just my puppy it feels so good to just be spending time with him but i do miss his brother already.