Sunday, December 23, 2012

heres another song for all of you enjoy

I love thsi song and video this young lady also has cerebral palsy the song is by willow smith and if you search this beautiful young lady on youtube she has many other videos that will inspire thsoe of us with cp

Saturday, December 15, 2012

second week of devember is almost over here comes the dreaded snow

this winter has been hard for me even though the temps have been fairly cooperative. Spasticity is not being so cooperative. the snow is coming which is increasing my anxiety on wanting to go outside at all with the fear of falling which i have already done once since it has gotten colder. This is why depression sets in for me so much this time of yearI miss the warmer weather where i can go out and enjoy the out doors already. I really want to swim this comming summer I have not been able to do that in three years i did sit in the water a bit last summer which felt awsome.
I have been thinking really hard on my new years resolution. i dont normally make on ebut i need to this year with everything that has happened to me and my family i need to get healthier. I want to get back to my low sodium diet and also try to lose some weight to see if that helps with my pain. I think the hardest part of losing the weight is sticking to the exercise part withte increase spasticity I get so tired so quick latley but i feel that i really need to do this But i can say im going to neesd lots of continued encouragement on those days where i just dont feel liek doing anything  and lots of people telling me its ok when those moments do come that I physically can not do the exercise because of the pain.
I dont want to have to rely on meds to control my pain I want to be as med free as possible and try to live as activve of a life as possible which i do with watching my nephew but i need to get healthie. writing this also for the bad days i have i can go back and look at it and realize how much this means to me. I have done it once but the second time seems as though its gonna be a bit tougher lol I am going to take pics of our holiday decor soon and post them for you all to enjoy

Monday, December 10, 2012

Another year older so not wanting another irthday lol

I turned 27 on friday it feels so weird to say 27. I dont feel any different being 27 and am happy to be through another year and am looking forwantrd to the new year in hopes of continued better health. this year i have to say has been one of the most trying ones yet from moment one. the endometriosis was pure hell for a long time then the ankle started really gettign tight which was kind of a shock then the surgery for the ankle and the endometriosis within two months of each other and the stroke that dad had I am definately looking for better days ahead.
thigs are more positive now though I am in less pain with teh ankle after the surgery although i can not walk very much without my AFO. the endo is fairly calm except for about a week out of each month right now and I am well aware that it more than likley will progressibly return to severe pain but I am enjoying the time i have that is with less pain.
My hip is still giving me trouble and so is my spactisity I am very nervous about what next year will bring. my legs are really painful this year and it is hard to walk this winter I am afraid that i will need assistive equipment in the next few years but if that comes I will get through that as well. 
I am starting PT for the hip on Monday not looking forward to it and really wondering what is next if it doesnt help very nercous with that as well. I have done cortisone shots had a bone scan mri x rays in the past and nothing showed. 
Things witht he body are so much harder to understand with cp. I know that pain is a normal part of spasticity but i did not invision things getting this difficult this early.
I got a call from the physyatrist teh other day which I had no clue was comming i was seen by him six month or so ago and it was left with not knowing why i was there so no appointment was scheduled at that time or not that i was aware of so i went about my life and started the process of getting back to normal with the pt that i need and then tehy call i was liek I had no idea i was suposed to return to ou guys i thought I was through with service since the doctor didnt reallly descrive what he wanted so I am not sure what to think on that but i am taking tings step by step and day by day that is all that we can do.
I hope that everyone has wonderful hollidays what ever it be that you celevrate and may the new year bring new hope for all of us

Thursday, December 6, 2012

update and welcome to december

it is hard to believe that another year has nearly gone by. this year has been a very long one for all of us. So many things have happened. two surgeries for me dad having his stroke teh birth of my new oh so handsome nephew the death of my puppy. But I have come through it all a stronger better person. There have been so many times where it has seemed impossible but I have done it.
another wonderful thing that happened this year is I met my wonderful counselor that i see now who has been wonderful to me. 
now on to the update on me. I have finished pelvic pt and I am very sad that I can not return there for my orthopedic pt I loved my pt's that i worked with at holistic pt they were wonderful all of their office staff are great but on a good note I am starting pt for my hip again on the 17th of December at mercy physical therapy center in Portland  Really and truly hoping it relieves some of the pain again  I am not in the mood for invasive shots or injections of dye again to see what is going on but I will do what i need to do to feel better.
I am not sure how many older people with cerebral palsy follow me or read without following but I have been experiencing a big increase in my spasticity this year especially since it has gotten cold wondering if this is common  wishing there was a doc out there that just dealt with cerebral palsy and took the time to figure out what is what with the condition.
I am really just confused and sad because I am afraid that because of pain and tightness i am not going to be able to walk in a few more years. I fell the other day in my driveway because of spasms and scuffing my toe despite the AFO which does help. It is really hard to walk without it well i think that's about it for now i will update more as the month goes on