PT is really on teh ball

I called my primary doctor this morning to let them know PT would be calling them and they had already done so. surprised me for sure usually they take their sweet time on these things. Now to wait and see if insurance will approve the unit lets hope so. I really just want my health situation to give me a break for a while but i do not see that one happening in the near future. I am also back to having the severe dry skin on my feet which has broken open and is very painful but I am putting the medication on them to help heal it. I missed biking last night because of my feet but I am going to do it tonight. My primary doctor recommended weight loss to help with the pain so I have to put fourth my best effort and do the exercise in order for her to see how difficult loosing weight is for me .

Not the greatest news from PT

The PT that I have right now does not feel there is much that can be done with my low back pain. I told her about all of the conditions and she was unsure of what to do or try so she went and had a quick meeting with a PT who does pelvic floor work and they agreed that the pain was not related to an injury or mal alignment but due to nerves that have been over active because of the pelvic pain.  I was kind of expecting this but it was still really hard to take in. Endometriosis and my bladder condition and now the pelvic floor dysfunction have taken so much from me. I thought that I would get relief once I got a diagnosis but the endo diagnosis lead to the Ic diagnosis which then lead to the pelvic floor dysfunction diagnosis. I really truly feel like nothing but a list of diagnosis's.

I am becoming so lost in pain and sadness sometimes. I wanted so much in life before my pain started and now all that I ask for most days is to be able to feel well enough to do at least something each day. I do have days that I can not do anything and I cry alot on those days because I know that I have responsibilities that I can not accomplish.  My primary doctor recommended weight loss to see if it would help with my pain level so I have been working so hard at trying to loose weight. I have stuck to it since the end of September I have missed one day completely because I laid down to let my stomach digest my dinner because i had really strong IBS pains after dinner and woke up at 200 the next morning and said oops was not supposed to fall asleep. I also cut one night short due to spasms in my back and belly

 but I am doing the best I can. I have not sen any changes yet but I am hopeful that i will. doing the fifteen mins a day makes me really tired but it is  something that i need to do and I also need to try and increase my times on the bike. I am going to start using the table bike again for my arms to see if I can stick to thirty minutes fifteen on each machine.

more physical therapy for me.

I just got a call from teh physical therapy center to schedule my pt Eval for my back. My doctor put me donw with a diagnosis of low back pain which I have but failed to tell them about all the medical conditions i have that could be contributing facotrs in my pain these being endometriosis pelvic floor dysfunction cerebral palsy and the IC. They wre going to set me up with a male pt until I listed out these conditions and told them I was not really comfortable having a guy and discussing these issues. they agreed and put me with a femal thankfully.
I am in a few suport groups for my endometriosis and I posted about being uncomfortable talking to a male about my issues and somone wrote a message back to me about how she is so tired of people being embarrassed about talking about endometriosis and todl me I should be telling everyone I meet basically about it. I was less than impressed and left a reply to thart message saying that I was refused treatment by a male pt due to these conditions and also rificuled by a pt in school telling me that my period was a normal part of life and that i was just tooo lazy to want to do my physical therapy. I said that I apologize for not wanting to be ridiculed or risk reliving anything like that. its awesome how soone who does not know the situation passes judgement. i do not pass judgement and only suport others with their choices even if I do not agree i may caution them with an experience that I had if I have tried the teatment however I remain positibe when doing so. sorry for writting about this here but maybe just maybe somone will get it I am lost and just needing to vent I go to these groups for suport thinking that they will understand and now just wind up feeling judged.

changes changes changes

So many changes happening lately. I am working reallt hard on doing cardio every day. I am six days in tonight. It is totally kicking my butt however I know if I do not try to loose weight I will continue to have low back pain and other issues so heres to hoping it works out. I had more padding added to my braces the other day to keep my skin from breaking down. The changes to teh padding in my braces seems to be making my toes on my right foot go numb. I am not sure what is pushing on my to cause this but I have not been able to wear my brace on my rigt foot much at all today due to this. I am also awaiting a call from a pain doctor to see about getting trigger point injections in my pelvic floor to see if it helps my pelvic pain . I will keep you all up to date

change in medication yet again frustrating

I am really uncomfortable since yesterday with my bladder so i called urology to see if the urodynamics testing was a possible next step however they are not sportive of it even though they gave me the information about it and I feel it would have been a better choice they are pushing a new medication on me so this is the route i will take seeing as it is the only one being offered. I just wish he would have just outright said I will not do uro dynamics until you try this medication rather than giving me something that I feel would be more beneficial and making me feel as though I am not able to make my own choices in medical care just frustrated and uncomfortable and waiting for a prior authorization for the med yes it is that new and the rule is Two other OAB over active bladder drugs must be tried well I have done this with ditropan and vesicare neither are effective.

Had a very bust week this week

I had three appointments this week. On Tuesday i went to New England Rehab hospital for brace clinic so they could see how things are going with my AFOs. They do not have many concerns just a few with callouses that are forming on my feet and the fact that my feet are extremely dry. They told me that I need to work hard on keeping my right foot in a neutral and straight position when I am resting with no braces on as they do not want a contracture to form on the right side. If this happens it would mean another surgical procedure. I go back in sic months for another check and hopefully when that happens I can get some new sneakers. I really need them. My sneakers have seen better days for sure.

Thursday i went to see my OBGYN because I had alot on my mind with medical stuff that was not settling well with me so I needed some things explained. the stuff I needed explained was urology related but she is so good to me that she will take the time to explain things in terms that I can understand. She is also going out on maternity leave until  January so I wanted to see her again before she left to have my IUD checked and just kind of a once over kind of thing. I go for my last lupron injection November 7th then i do not go back until February some time provided everything cooperates. Heres to hoping that happens.

And today I had an MRI of my lumbar spine because I have been having alot of low back pain. I always have low back pain with the pelvic pain but this pain is different It is making it so it is hard to stand from a sitting position and hard to turn over in bed along with other difficulties in daily life. Usually if the back pain is related to the pelvic pain if i get the pelvis to calm down the back will but it is nearly non stop.

I will be making an appointment soon with my primary doctor to let her know what has gone on with gyn and let her know that my ob wants me to look into trigger point injections for my pelvic pain and also to get a flu shot they also mentioned a test called uro dynamics that my gyn feels would be beneficial for me to have so it is going to be busy for me for a bit but for now I am taking a break Heres to hoping thing calm down for me soon.

the craziness continues

I am not sure where everyone has gone but I miss having comments to read. I hope that you are all ok and nothing serious is going on I miss Emma and malayna I hope that things are going well/ Any how an update on me. I am currently taking lupron again for my endometriosis and also trying to get  my bladder condition under control/ We are discussing more testing on my bladder along with a procedure that uses acupuncture to possibly help control the pain also there has been talk of surgical intervention the device is called the interstin/ It is basically a pace maker for the bladder so that it stops the nerve impulses from becoming overwhelming, I also have had an appointment for low back pain and I am going for an mri Friday well I think that is about it for now/