Thursday, November 5, 2009
In response to Sheila's comment
Well i thak you again for viewing me as amazing but I don't really see myself as any more amazing that the next person in line. Having CP is just a part of my life as it is yours and your daughters. I have battled for a lot but that is just something we must do to get the things we want and need. As I am sure you know nothing comes easy with CP or any other chronic condition. Best of luck with your daughter and Keep your head up and keep climbing no matter how hard it gets
Tuesday, November 3, 2009
The depressoin that a chronic medical condition brings with it
I unfortunately have had a long term issue with depression. It is hard to explain why but it happened. I would not change who I am if I could because i am a great person and i would not be me if i had not been born with cP.
It is tough not to become depressed though. I still have to deal with everything that comes along with this like the rstrictions it puts on my life. There are some that i can not control. I will never be able to drive because of the visual issues that i have which i have talked very little about but i will fill you all in on those later.
I never really felt like i fit in wht everyone else because everyone just really wanted to be helpers. I will admit that is how i met the friends i have but they were willing to see beyond me needing assistance and let me just get to know them and they actually helped me to become more independant in many ways.
I honestly think alot of the depression comes from having to deal with all of the medical issues from such a young age. I still have more trips to doctors than others my age. That is just how it is because my imune system is weaker than everyone elses from being born early. Teh docs said it would catch up and i will admit it has done a great job but it still has its faults.
I do not like having depression and have been working incredibly hard to learn to cope with it and am hoping to eventually become free of it but even if that does not happen i am learning how to take control of depression not let depression take control of me. That is so important but sometimes its tough to do. I usually take things day by day and go from there that is how life works best for me.
It is tough not to become depressed though. I still have to deal with everything that comes along with this like the rstrictions it puts on my life. There are some that i can not control. I will never be able to drive because of the visual issues that i have which i have talked very little about but i will fill you all in on those later.
I never really felt like i fit in wht everyone else because everyone just really wanted to be helpers. I will admit that is how i met the friends i have but they were willing to see beyond me needing assistance and let me just get to know them and they actually helped me to become more independant in many ways.
I honestly think alot of the depression comes from having to deal with all of the medical issues from such a young age. I still have more trips to doctors than others my age. That is just how it is because my imune system is weaker than everyone elses from being born early. Teh docs said it would catch up and i will admit it has done a great job but it still has its faults.
I do not like having depression and have been working incredibly hard to learn to cope with it and am hoping to eventually become free of it but even if that does not happen i am learning how to take control of depression not let depression take control of me. That is so important but sometimes its tough to do. I usually take things day by day and go from there that is how life works best for me.
my relationships
Well I am 23 and I have a great relationship with my family and few friends. I have an interest in guys but i am not sure i am ready to attempt that. I have never had a relationship with a guy. I never even dated going through high school.
I am getting tot he point of where i am begining to wonder if it really matters as long as I am happy. Before i wanted it for acceptance but now it does not matter who accepts me because the most important people in ly life are my family and they accept me for who I am and i onve that. I have hope that i will someday meet a man who will accept me for sho I am but i am not in a huge hurry right now.
I don't really know the eason for lack of relationships but i know some of it has to do with the fact of never really feeling accepted with my peers.
I am getting tot he point of where i am begining to wonder if it really matters as long as I am happy. Before i wanted it for acceptance but now it does not matter who accepts me because the most important people in ly life are my family and they accept me for who I am and i onve that. I have hope that i will someday meet a man who will accept me for sho I am but i am not in a huge hurry right now.
I don't really know the eason for lack of relationships but i know some of it has to do with the fact of never really feeling accepted with my peers.
Just to let you know how im doing
Well the weather is starting to get colder which is not fun for most with CP. My legs are bothering me and my muscles are stiff. My hip is bothering me but that is not uncomon. I am pretty much used to it all but sometimes people do not seem to understand that someone can actually get used to feeling pain.
people ask how i do everything i do if i am in as much pain as i say I am? I just give them the honest answer of I just get up and do it and try not to think of the pain. I know there are many out ther ewho are worse than me and that always seems to be what others say too and to them keep going Stay strong, I just sit and think and tell myself it takes a stronger person to live with CP.(and any other chronic medical condition)
people ask how i do everything i do if i am in as much pain as i say I am? I just give them the honest answer of I just get up and do it and try not to think of the pain. I know there are many out ther ewho are worse than me and that always seems to be what others say too and to them keep going Stay strong, I just sit and think and tell myself it takes a stronger person to live with CP.(and any other chronic medical condition)
Sunday, November 1, 2009
A funny story when i was younger getting my braces made
As i said i would give stories of times in my life to share weather it be past or present here is one of many.
It is very odd but this is one story i will never forget. I was probably four or so and had to go have my braces adjusted. I did not like this process much and when the orthotist went out of the room i ran into the area wehre they did the PT and was in there playing when he returned.
Well needless to say i am pretty sure i was one of his favorite patients because he let me sit and play while he fixed the braces so they fit corrently or maybe it was just because it was easier for him lol. These are the kinds of doctors that all kids need the ones who are willing to incorperate play or an activity that we like into our appointments. I know they say that docotrs are not supposed to be fun but this guy was and he will be remembered forever for that
It is very odd but this is one story i will never forget. I was probably four or so and had to go have my braces adjusted. I did not like this process much and when the orthotist went out of the room i ran into the area wehre they did the PT and was in there playing when he returned.
Well needless to say i am pretty sure i was one of his favorite patients because he let me sit and play while he fixed the braces so they fit corrently or maybe it was just because it was easier for him lol. These are the kinds of doctors that all kids need the ones who are willing to incorperate play or an activity that we like into our appointments. I know they say that docotrs are not supposed to be fun but this guy was and he will be remembered forever for that
Any questions or information anyone is curious on
Please feel free to comment or leaave your questions. I will reply through a post
What i am going through right now
Well, I gave you all some of the information about my younger years and may still add to it with stories as i remember them but I am 23 years old and will be another year older in a month. I am starting to experience some of the issues of aging with CP.
I am more stiff as of the past three or four years. It makes it harder for me to get around. I also have hip impingement syndrome and it is quite painful at times. I think it may be related to the wear and tear of living with this condition for so long. Even though i am going through all of this i still try to remain happy go lucky. Sometimes it is tough. I am waiting to hear on surgery to fix my hip and hoping it plays out so i can feel better and get back to my old self again.
I am more stiff as of the past three or four years. It makes it harder for me to get around. I also have hip impingement syndrome and it is quite painful at times. I think it may be related to the wear and tear of living with this condition for so long. Even though i am going through all of this i still try to remain happy go lucky. Sometimes it is tough. I am waiting to hear on surgery to fix my hip and hoping it plays out so i can feel better and get back to my old self again.
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