a description of living with cp through some of my personal experience. i wish i had started it earlier because it would have been much easier but my goal is to help other understand the difficulties of having CP and how it can make you feel
Thursday, October 6, 2011
lupron yuckies have begun
I am not having any menopausal or pain symptoms yet but have been very queazy and blah since like four hours after my lupron injection. tis is not new it happened to me after the others as well but they told me that I had a virus but i dont think so I think i get one of the less comon side effects of lupron. Or it could also be from my flu shot but i dont usually have much reaction witht hem besides a little fetigue so i will be bringing this up to My gyn on the first just to let her know but im not too concerned about it the second round just confirmed that the nurse was wrong and i didnt have a viral infection last time.
Wednesday, October 5, 2011
Lupron is in
i went in this morning to get my lupron injection and the receptionist knew me on a first name basis already lol only because it was her whom I talked to twice when i was trying to arrange transportation. i did get good news this round. it will only be two injections because each one has three months worth of medication in it. my first round I had a 3.75 injection every month so I am glad that i can have only two injection it burns more but it is lees needles which makes me very happy My nex appointment is november first but I plan to doccument my second journey on lupron here and I already know it will be a rough one so I thank all for their suprot in advance the pain will be begining to increase within the next few weeks because when they administer the first injection of the series the lupron has an inital stage where it increases the ovaries production of hormones but then it shuts them down for the remainder of the six months which is when the menopausal symptoms begin i will doccument more as it comes and again thank you to all of my dedicated readers
Tuesday, October 4, 2011
another OBGYN update
My doctor is the best. she had the practice call me the friday before she was due to start working there and get me an appointment for Monday which was OCtober third. So I am now back in the regular comfort of my own doctor thankfully. Things went fairly well being basically as i expected. We talked and decided on another course of lupron which is not my best friend but if it is going to take the pain away for a time than im in for it.
the interesting part was that the nurse came out to get me and said welcome to generations this is your first time here right but not the first time with Dr P i hear u guys go way back I just kind of laughed apparently she briefed them on me but hey thats ok it makes for a much warmer welcome. I got the routine sruff done and a flu shot and tomorrow the lovely joy of my first lupron injection will great me at 8:30 but to clarify i have had one course of treatment with lupron this will be my first shot of round two. I will be on it for six months yet again and then we are discussing surgery because she wants to see if the lupron will shrink the endo to make it easier to remove lets hope it makes something easier well that is about it for now i will document this round of lupron better han I did the last Im not going into it blindly so at least i know what im in for Im just happy tha tit will stop the pain for a while again as long as it works the way it did the first time that is.
the interesting part was that the nurse came out to get me and said welcome to generations this is your first time here right but not the first time with Dr P i hear u guys go way back I just kind of laughed apparently she briefed them on me but hey thats ok it makes for a much warmer welcome. I got the routine sruff done and a flu shot and tomorrow the lovely joy of my first lupron injection will great me at 8:30 but to clarify i have had one course of treatment with lupron this will be my first shot of round two. I will be on it for six months yet again and then we are discussing surgery because she wants to see if the lupron will shrink the endo to make it easier to remove lets hope it makes something easier well that is about it for now i will document this round of lupron better han I did the last Im not going into it blindly so at least i know what im in for Im just happy tha tit will stop the pain for a while again as long as it works the way it did the first time that is.
Friday, September 23, 2011
Phone calls keep comming docs arent my friends right now lol
I got a phone call from the Ob clinic the other day and the nurse said that the ob that was taking care of me talked to my usual ob who is not practicing right now and my regular doc told her it was fine for me to do another six months of lupron. this being said after i specificly told the gyn that i wanted nothing more to do with lupron. So it is sounding like that is going to be the teatment of choice or keeping my pain but we shall find out in october they wanted me to go in and start the treatment the other day and i told them no i am waiting to talk to my regular doctor in hopes of them having another option.
Saturday, September 17, 2011
OB apointment update
As promised here is the OB cisit in a nut shell. i saw doctor this time which was good. We discussed my options wheich may I tell you are few and far between. They told me that they were willing to do another lap but as far as removing anything they would not know until they were in thre so i declined that option and the other option i was given was lupron again and also declined that. The reason being I had horrible side effects on the lupron and I am not subjecting my body to another surgery with out knowing that it is going to reliece any of the pain I am having. they told me they would not want to be in my position at my age well of course I already knew that one and told me that narcotic pain medication is not the solution which I already knew that one too. So all in all not much was done and I am currently waiting for my regular OB to retyrn in october so I can have a discussion with her because he offers more support and insight into what she feels would be most helpful the two docs the other day just totallk left it all up to me i felt so lost and alone it was almost unbearable. The only matter of fact answer I got is not total hystorectomy until at least thirty five really another ten years of this agony Im gonna need alot of suport for sure well thats about it for now hoping I get better news in a few weeks.
Monday, September 12, 2011
is it thursday yet
I am waiting for thursday really need to see the OBGYN the pain has started yet again. The cycle has been getting shorter and shorter. I just hope that something can be done soon because i do not want this pain any more for a while even if it is just a change in medications for some relief. Im not so sure i am ready for surgery again but i guess if that is the only method for relief than we will go for it. I am just struggling to understand how I am in this much pain again after such a hard long road to get six months of medication in hopes of relief only for it to return already. i feel like i am becoming lost in the endo battle again but i will find my way out and through all of these struggles.
Saturday, September 3, 2011
welcome the month of september as IC awarness month
as most of my followers know i have IC intersistial cystitis. this is a very painful and debilitating condition. it causes me and many others to suffer with pain pressure freequency and urgent need to urinate. I have had a lot of bladder infections in the past but in recent years I have had symptoms with negative urine culture results and that is when it became evident that I needed further investigation into what was going on. My OBGYN did a test called the potassium sensitivity or potassium chalange test. this is a very painful test for an Ic patient. Two different solutions are infused into the bladder via catheter one is regular water and the other contains a dilute potassium solution. In the normal bladder people should not be able to tell the difference between the solutions but in my case i was imediately able to tell my doctor which one contained the potassium so it was determined that I have IC. this desiease is very contrivertial and there are still some doctors out there that do not believe it exists but I am a survivor of this condition it is real and it is painful it is not in our heads we know our bodies and how they should feel bladder pain is not normal. i hope that this helps to spread awarness I am not a medical professional and i am in no way trying to be I am just trying to spread awarness of a very painful condition thank yyou for taking the time to read this post.
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