Friday, July 26, 2013

where are my usual readers hope all is well

i really miss those special readers who usually leave me encouraging uplifting comments on here. Amy and emma i hope all is well with you. Also a shout out to malayna annd sheila hope things are going good for you as well things are going ok for me.
On teh note of cp things are on a pretty even plane where things are just kind of hanging out staying the same. I had a med change for muscle relaxant from flexeril to zanaflex because teh flexeril wasnt helping the pain from spasms in my legs anylonger. I am still on gabapentin for nerve pain as well. As for the Endometriosis that is another story in itself. i am back on luporn for that which has been making the past week a miserable one since the initial injection actually causes and increase n pain followed bu slow resolution of pain which hopefully will begin really soon can not take this much longer its pretty constant right now but it isnt much worse than the flare I had before starting so i cant complain too much. I am awaiting hotflashes and the awesome night sweats because then and only then will the pain officially remain gone until the end of treatment. It isnt a very fair trade but id rather sweat and be hot than be in pain. The mood swings wont be any different since i am mooduy because of pain no one will notice more than likley haha. Hoping mom doesnt try to ship me to another planet like she wanted to do with my first  round of lupron. I know what to expect now though as this is my third round with it. I try really hard to control my moods and when I cant and i do get upset I appologize. Thankfully my family knows why they happen. that is about it fr ome these days oh yes i am nearly finished with my second round of pelvic pt i am not so sure this is good but it is what is happening. I rally wish that people would make it possible for those of us with cerebral palsy to get continued pt through our adult years. My PT told me that alot of my pelvic floor issues are acttually related to my cp and tone such a hard thing to keep under control thats for sure but i plan on continuing to do so and also going back to pt when needed. even though insurance is very picky about how much they cover.

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