Thursday, June 20, 2013

Got my AFO yesterday needs some adjustments

I got my brace yesterday for right foot and leg it needs adjustments though. It pinches in the back behind my knee when i doing certain things and also causes two of my toes to get numb after a  bit of wearing it. I am supposed to go back in today when dads personal care worker gets here/ We shall see if it is strap positioning or what making this happen. I have never gotten numb toes from an AFO lol It doesn't seem tight or anything but I also noticed that my heel does not stay back all the time when I am walking which will eventually cause skin breakdown so I need to get that addressed.
I am also experiencing the burning in my pelvis again like endo pain. Very sad about this but I am going to deal with it until I can no longer stand the pain. I am not ready for lupron or surgery again. I just need a relatively calm year for now with endo I cant deal with all of the issues at once. I had to call my GYN because oddly enough my pelvic pt saw my lap scar and immediately told me I needed to have it looked at by the surgeon because it is extremely red. they are concerned with infection. Waiting to hear back from my doctors nurse as appointments were offered with my doctor however I could not get to any of them. I don't expect to be a VIP patient however I do expect understanding of my situation which this nurse had none. I love my doctor and my nurse but this was not my usual nurse.

I had my second visit for pelvic pt Monday. I have to pay out of pocket as my insurance doesn't seem to see the need for pt again with reasoning that I had it last October. Yes I did finish a round last October and continued with the stuff I was supposed to do but Pt requires a different approach after a certain amount of time in order to continue the relief. they approved one visit for this time which was the eval. they don't do much in that appointment besides muscle checks to see what is needed. I don't think they truly get the pt routine ugh thankfully the place i go for pt is understanding and want their patients to get care even if we are disadvantaged so they have given me a monthly payment plan and a discount.

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