I got your hug and an update on how I have been working to help myself through this pain

thanks sheila i neeeded that virtual hug my month is going to be full of torture I have an appointment on the fourth which is the usual appointment to help me deal with all of this and get my pent up feelings out then I have another one the tenth for my primary doctor and then the s6th for my catheterization for the potassium sensitivity test then the 18th is the gi follow up with their murse practitioner. I ma not ready for november first tomorrow at all I need a break for a while for sure. I just can't wait till this is over iwth. I have been keeping a food journal to see what foods upset my stomach and have as of now come to the determination that any form of eating is not good. Onions are a trigger food for me thoguh so there is one i will no longer be eating other than that have not found others yet but I am workiing on getting to the bottom of this yet again on my own. No one said to keep a log but I am not going to live like this forever. I will restrict my diet until I can not restricy it any more if tht is what this takes. i just need a break from it all. I am happy to say that i will be going trick or treating with the kids no matter what it takes. this is something I want to do i mised it last year and not gonna miss it this year

Frustratied to no end today

I have been in extreme pain yet again today. I called the GI to see if they would help with the pain. They refused to do anything becasue it is not solving the issue so they moved my appointment up but yet it is with another doctor. This kid of irritates me because now they are saying every symptom I am having is related to IBS. I dont understand how that is because I have had IBS for a long time and gerd as well and vomiting is not a symptom of IBS yet it happens every time or most times i have really bad pain in my stomach yeah kind of confusing to me. I do not feel that this is Ibs I feel like it is something different that is not showig its full evil yet. We shall see I guess For now i am stuck with it and will be forever by the feeels of it. it fefuses to just leave me alone.

very long day today

I had a long but productive day today with medical appointments. I finally got my temporary crown done and I am down to needing only three more fillings and i will be done with the dintist again for a bit. until I go to my next cleaning and ecam. they will find more cavities they always do. I think mine are a combuination of all the medication that i have been on plus i have reflux so any how i spent nearly tow solid hours in the chair today.
I got almost through the appointment and when my mouth was finally empty enough finally told the dentist that i had to go pee she laughed and told me nect time to raise my hand and shell empty my mouth well I should have thoguht of that but that is usually the signal for me feeling pain so I did not dare to do tht because i figured she would stick me again lol she had to give me two injections today because the appointment was so long. I got my temp crown and another filling done all in one sitting. The crown process is deffinately a gard one. It was kind of pain ful because when they make the crown they put some thing inthe area right near the gum line and pack it down to make the shape of the temporary crown so my mouth is pretty sore right now but i am satisfied witht he end result for the temp crown and my mouth should begin to feel better really soon.
I made a huge mistake of eating when iu got home evidently today is going to be one of the days where my tummy really hurts after i eat. I had oatmeal this morning wheich went ok but I didnt feel quite right after so I stuck to drinking tea until I got done with the dentist to prevent neasua because that would have complicated things more than my needing to pee did. I had soem left over pizza when i got home and that was a huge no no. I dread eating and that is not normal. I am so confused right now. Just hanging on until january unless it gets to the pont I am not able to. I am wondering if that will be sooner rather than later ans the pain is comming on full force again on me it has been ok for a few days not now though.

Celiac negative thank god

I got my labs back yesterday. I found this out late last night when mom and dad got home and I am very happy on that note. the only thing is I have to keep going like this for another three months until I have a follow up in january with him. those are his recomendations so I guess I have to follow them rihgt. i just dont really know how I am gonna get through another three months like this. Lets see lots of patience and probably days of being sick but ill get there.
Dental appointment tomorrow. those are getting easier each time lol. this one os for my crown well the temporary one and another filling It is going to be a two hour appointment no wonder I know my dental staff well lol.
I also have my usual weekly appointment tomorrow with my counsoler but that is easy. It is just a totally busy day for me but that is Ok Ill get through yet another one of my great days not so great honestly. I have times where my family asks me if I like going to the doctors because I go so much. That really hurts because that is not the reason that I go. I dont think people even doctors understand what a life with multiple chronic medical conditions is like.

here is the list of what conditions i have that I consider chronic feel free to post your imput if they are or not
Cerebral palsy
endometriosis
crecurrrent undiagnosed or unexplained bladder pain
recurrent unexplained abdominal pain with bowel inflamation on biopsy
visual impairment so i can not drive to enable myself to easily get the help that i need cant get to appointments without assistance major stressor
GERD although it is well managed most of the time

There are probably mor but hey thats enough right. I am so thankful to have the family that i do because they do help me and that is even when they do not feel that I need it. Thank you to mom Jess Auntie Elsie and many others for everthing you have done for me. I dont know where I would be with out all of you love you guys so much.
I had kind of a long day yesterday but it was a good one. i am still recuperating from my bladder infection which i think was a little closer to a kidney infection but not quite cause i usually dont get back pain with them. But I had my lil two year old nephew so I asked auntie if I could come to her house for the day until near bed time and she was good with it. i also needed assistance because he needs drops and cream in his eyes from his surgery and with my vision and his fighting it si not a good combo lol we went for a walk and he rode in the wagon and i saw my niece ride her bike. she has been doing it for some time but this is my first time seeing it. it was another great day despite the fact i do nto feel like myself. when you are someone who lives with chronic conditions you learn to take all of the little things and enjoy every single one of them. i am really excited for halloween so I can go trick or treating with the kids I hope i feel well enoguh.

firsy appointment with new doc scheduled

Scheduled a two week appointment for the UTI with the new doctor to see if my urine is clear. Lets hope it is. Started the antibiotic this morning after waiting to get it. luckly the doc is close to the pharmacy lol two trips for the price of one. Other than that not feeling tooo good right now but hanging in there.
I am watching my nephew today other than that not too much going on. I hope this goes away soon my back is hurting me pretty badly but it should go away with antibiotic I hope.

oh my word sick again and yes it is another issue

Well my stomach has been hurting in the bladder are for twi dats now i thought it was just another episode of bladder pain but today my back started hurting so I gave in and went to mercy express care. well guess what its another round of medication for me and I am officially in between docs right now but when i go to get my medication tomorrow for my UTI yes so much fun not ha ha I need to make an appointment for a week from today to make sure that my uti is cleared. I am on cipro for the next five days so we shall see. i am so darn tired of all of this and i know the reason i am having infections is from being so fetigured and stuff from the abdominal pain I am ready to cry honestly and as for having the determination to try the diet I do but I am just not sure i should start it yet in case they decide to run mor eblood tests. dont know what the next step is from here just hoping its not telling me I am stuck this way for life ahhhhhh yep there is a dreaded scream those have been going through my head alot lately. I am so tired right now gonna feed the puppies and head to bed soon as mom gets home I was suposed to do the dishes today but i got everything else done and started the dishes so hope that is good enough

trying not to worry

i know it is better to wait for labs to return but i think no matter what the labs say I am going on the diet because some people do not show the antibodies in the blodd and only show on a gene test or so I have found through my own research as most docs are not willing to be of assistance at least not he old one waiting to see the new one and praying she will be of more assistance. I just really dont know what to do tired of pain tired of being sick I guess just sick and itred of being sick and tired. Basically at this time I am willing to try anything to see if it releaces the symptoms een if it is not positive testing for celiac I am ready to grasp at any possibility or as my other doc put it any straw to try and help myslef since others can not seem to be of assistance thank you sheila for being such a dedicated follower i really apreciate it so much