a description of living with cp through some of my personal experience. i wish i had started it earlier because it would have been much easier but my goal is to help other understand the difficulties of having CP and how it can make you feel
Saturday, May 29, 2010
Still doing great with pain but now nervous because of a dental appointment comming up
I have a dental appointment comming up for my root canal on tuesday and I am so nervous. i have had plenty of fillings but this is different and I do not know wht to expect at all it was not really explained to me at all because when I was suposed to see the dentist who was originally going to do it so he could explain it I found that he left the practice so needless to say I am kind of in the dark with this one. Very nervous which does not help anything at all
Thursday, May 27, 2010
unusual feelings for me lol
i have had a really great few weeks lately since pt. I am actually starting to get bored more often now and want to go do things to occupy my mind. Basically the computer is no longer cutting it for amusment lol. i am glad of that actually now it is just time to figure out the activities i am able to do. I am still afraid to push it too far. I want to make the no pain last for as long as possible. Getting back into things slowly.
i had my appointment with My counselor today and she is even noticing how much happier I am even with everything still going on. It is still kind of shocking to me im getting used to no pain again and loving every minute of freedom that I have. i missed it so much. It is amazing how much physical ilnees and pain can contribute to depression seriously it goes hand in hand for me as well as so many others.
Well in other news for today i am currently working on a project for a baby shower gift for my cousin but it is going to end up being a birthing gift since her shower is in like a week from asturday lol. it is a cross stitch quilt. I have been working very hard on it but can only do so much of it because i can not thread the meedle because of my visual issues and habd eye cordination and the lovely difficulties of fine motor skills because of cp. its ok though I am thankful for the things i can do. learned fast not to dwell on the can'ts in life because in reality I can do what i put my mind to althouhg it takes longer. thereading a needle though may just not happen and i am fine with that. Family is grat about it I love you mom and auntie for all the help and suport you give me
i had my appointment with My counselor today and she is even noticing how much happier I am even with everything still going on. It is still kind of shocking to me im getting used to no pain again and loving every minute of freedom that I have. i missed it so much. It is amazing how much physical ilnees and pain can contribute to depression seriously it goes hand in hand for me as well as so many others.
Well in other news for today i am currently working on a project for a baby shower gift for my cousin but it is going to end up being a birthing gift since her shower is in like a week from asturday lol. it is a cross stitch quilt. I have been working very hard on it but can only do so much of it because i can not thread the meedle because of my visual issues and habd eye cordination and the lovely difficulties of fine motor skills because of cp. its ok though I am thankful for the things i can do. learned fast not to dwell on the can'ts in life because in reality I can do what i put my mind to althouhg it takes longer. thereading a needle though may just not happen and i am fine with that. Family is grat about it I love you mom and auntie for all the help and suport you give me
Wednesday, May 26, 2010
Post to sheila
hey sorry to hear you have been underthe weather. So far the improvement has lasted witht he hip but now my entire body aches because of all of this heat and humidity. Adjustments to this kind of stuff have always been tough for me and are not gettig easier with age. gotta love getting older. Hope that your health improves fully soon ive missed yourcomments i look forward to all of them how is malayna doing with everything/
Saturday, May 22, 2010
feeling beetter
Well as i said I had my last session of PT on tuesday and am still kind of dissapointed that I had to stop going but the good news is that while I was there for my last one he was streaching my leg by pulling on my ankle and something near my hip popped and now it does not hurt anymore. I am thinking maybe it was just starting to move itself out of place but it was not fully out or out enough to be visable on an x ray either that or a tendon was really tight not sure but I am feeling better so that is great. I hope it lasts a long while At least a year until I can get more PT for my hip lol To sheila I hope all is well with u guys have not heard from u in a bit
Tuesday, May 18, 2010
update not so great though
I am kind of feeling down right now. i just got back from mt second and evidentaly final pT apointment for the year. He was hoping that I could get up to six because of the Cp and mobility difficulties but the insurance was not willing to cover anymore so now I am going at it solo again. this is honestly how i feel about it. if the insrance companies do not pay for adult PT for those with disabilites than why is it pushed upon us so much in school setting and with a pT there to aide in our streaching. I feel that we should be able to get Pt services if we have disabilities like cerebral palsy at least one tiem per week covered by insurance.
I feel that since i have reached adult hood everything has just dropped off the planet about My Cp when i was younger my entire life revolved around it and now I can not get the assistance i need as an adult. something in this workd needs to change to allow for those of us in need to get what we need. I am so frustrated right nwo because I feel that no one besides my PT and fellow friends with Cp really undrstand. I feel like we have to fight for every thing that we have and we still do not really get the things we need. Well that is all for my venting today i will just have to do my best to stick with the program he gave me for home but it is not th
I feel that since i have reached adult hood everything has just dropped off the planet about My Cp when i was younger my entire life revolved around it and now I can not get the assistance i need as an adult. something in this workd needs to change to allow for those of us in need to get what we need. I am so frustrated right nwo because I feel that no one besides my PT and fellow friends with Cp really undrstand. I feel like we have to fight for every thing that we have and we still do not really get the things we need. Well that is all for my venting today i will just have to do my best to stick with the program he gave me for home but it is not th
Wednesday, May 12, 2010
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