a description of living with cp through some of my personal experience. i wish i had started it earlier because it would have been much easier but my goal is to help other understand the difficulties of having CP and how it can make you feel
Sunday, September 19, 2010
horrible weekend
My pain and cramping got so bad that i went to the er again by rescue. I was honest with everyone and told them I had endometriosis and that is automatically what tehy thought it was. nope it is not because endo pain does not get worse when i eat if I am neasuated that does but the pain was horrible pain every time I would eat or drink. and for the most part still is. well still have no clue what it is they did another CT and u;trasound and then said well ther is nothing more that we can do. They said that no GI doc could see me until monday and zI could not stay there because i was not bleeding from my stomach. Morphine was not touching the pain for anything until they gave me like four or five doses. Oh well I am home for now On strong pain meds and antineasua medication which i need to go and take now before it gets too bad just ate a soft taco shell I have had that a yougert and bread one slice all day and sips of grape juice yeah nothings wrong my butt here we go round the hellish circle of docs again
Thursday, September 16, 2010
its finally thursday
this week really seems endless. I am exhausted and in pain yet again with my ovaries and palvis and yes nladder. basically my entire belly from belly button down is burning to no avail. My back is going along too. Lets just say I know no one here who follows has endo but for anyone who does don't let your doctors push your complaints to the side.
My Ob is really good and thankfully does not do that she takes eberything into consideration even the things that dont concern her like my legs and spacticity. Well I am going to go and try and get some dishes done i have an eye appointment comming up on wednesday kind of looking toward knowing eberuthing with the eyes are good minus the stuff we already know i have nystagmus and astigmatism.
I also calle the doc to get my migrane perscription filled again and they had to change it becase insurance requires that their members take imatrex before any other medication for migraines. dont ask when they changed that one lol but here we go with another medication lets just hope either it works or i dont get a migraine lol
My Ob is really good and thankfully does not do that she takes eberything into consideration even the things that dont concern her like my legs and spacticity. Well I am going to go and try and get some dishes done i have an eye appointment comming up on wednesday kind of looking toward knowing eberuthing with the eyes are good minus the stuff we already know i have nystagmus and astigmatism.
I also calle the doc to get my migrane perscription filled again and they had to change it becase insurance requires that their members take imatrex before any other medication for migraines. dont ask when they changed that one lol but here we go with another medication lets just hope either it works or i dont get a migraine lol
Tuesday, September 14, 2010
err life as usual nothing goes right for some reason
Well i went tot eh dentist this morning fully prepared for a cleaning and an exam to be done. that is what was scheduled on the previous visit for this appointment get there and in the room before they tell me it is only my ecam. Had I known that I would have changed the appointment so I could have gotten both done at once.
Now I have to go back yet again for two more fillings and my cleaning and then yet two more times to have the crown completed. I am not in a good mood to say the least today and on top of the not having things go right I get queasy stomach on the way there every time but this time i litterally got sick and ended up throwing up. that is the huge reason I ask for afternoon appointments there because it is not as bad as in the morning with my reflux and stomach issues I want to honestly either scream or cry right now because I feel that nothing i ask even matters anymore I dont ask for specific things to be a pain in the butt it is to make it easier on me and everyone involved
Now I have to go back yet again for two more fillings and my cleaning and then yet two more times to have the crown completed. I am not in a good mood to say the least today and on top of the not having things go right I get queasy stomach on the way there every time but this time i litterally got sick and ended up throwing up. that is the huge reason I ask for afternoon appointments there because it is not as bad as in the morning with my reflux and stomach issues I want to honestly either scream or cry right now because I feel that nothing i ask even matters anymore I dont ask for specific things to be a pain in the butt it is to make it easier on me and everyone involved
Thursday, September 9, 2010
official urine results are in
i got the call today that the urine culture was in. It was deemed contaminated by having too many of the normal bacteria that are found in the lower region in it, u did the clean catch the way I alwayshave and trust me ive dont many and this is the first one that has come back contaminated so i have not a clue what went differently this time but any way i made the right choice not taking the antibiotics because it seems to be letting up some, I know what to do sometimes lol, i tole the nurse practiioner that i was feeling a bit better and she said to stay on the antibiotics and then i was like i didn't start them because i do not want to become amune to them and she totally understood so now once again i have my confirmation it is most likely the endo or to be determined ic later on in october so we shall do the waiting game together again, I would love to go back to august i had no urinary symptoms just the cramping whih is annoying but at least i dont have to pee all the tiem with it lol
Tuesday, September 7, 2010
frustrated yet agian
still having ankle pain which i can live with because i do not want another trip to the ortho. On saturday after the benifit i started having bladder pain again. I went to my primary today to see if it was an infection and they said right now it is not shoowing on the dip but there is blood in it so she said that i needed to contact my Ob to see if they were going to do the test for IC and if that is negitive to see on getting into a urologist. i am on antibiotics until the dip culture comes back. this is rediculous. I just want a break for longer just leave me alone please. I want my life to be consistant and not so up and down. I miss my old life before the endo for sure well beofre it got to this point any ways
Sunday, September 5, 2010
holly cow busy weekend lol
I did end up going to the benifit yesterday it was fun they had live music and plenty to eat not that i did much of that lol. I got to visit with another friend that i have not seen since high school. it was great.
After the event i went to my sister's house for the night with my cousin and niece. then today i spent the day at another friends house. I don't usually get to do much buyt man when things happen it is all at once for me lol. all in all a great weekend but I am glad to be home finally lol. Now i am relacing and realizing just how much this weekend has taken out of me. We went apple picking today it was cool only the second time that i remember going may have when i was younger dont remember though. Well im gonna go to bed really soon my nephew is spending the night with me so I better get soem sleeep! Otherwhise he will be ahead of me oh wait he usually is any how but it is worse when i am tired
After the event i went to my sister's house for the night with my cousin and niece. then today i spent the day at another friends house. I don't usually get to do much buyt man when things happen it is all at once for me lol. all in all a great weekend but I am glad to be home finally lol. Now i am relacing and realizing just how much this weekend has taken out of me. We went apple picking today it was cool only the second time that i remember going may have when i was younger dont remember though. Well im gonna go to bed really soon my nephew is spending the night with me so I better get soem sleeep! Otherwhise he will be ahead of me oh wait he usually is any how but it is worse when i am tired
Friday, September 3, 2010
ughhh
Im feeling kind of frustrated again. i have been having ankle pain on and off for a couple weeks now and i have really been debating weather to go to my primary or do the ortho again. I am so confused. I dont want to go if they are just gonna say there is nothing wrong. i hate that It is so frustrating.
i called the ortho last week and he was out of state so not much help for me now it has been another week and i just do nt want to call again. uggh what to do what to do. I am so tired of the pain comming out of nowhere and having no one able to help figure out what is up. otr for that matter finding ways to the docs that is tough too because everyone has their own lives that need to be lived and I deffinately understand that .
I am planning on going to a benifit tommorrow for fy friends uncle to raise money to get him a power wheel char. Not sure how long ill be staying but i will be giving my ten dollars reguardless of the length i stay it all depends on how i feel
i called the ortho last week and he was out of state so not much help for me now it has been another week and i just do nt want to call again. uggh what to do what to do. I am so tired of the pain comming out of nowhere and having no one able to help figure out what is up. otr for that matter finding ways to the docs that is tough too because everyone has their own lives that need to be lived and I deffinately understand that .
I am planning on going to a benifit tommorrow for fy friends uncle to raise money to get him a power wheel char. Not sure how long ill be staying but i will be giving my ten dollars reguardless of the length i stay it all depends on how i feel
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