Thursday, May 23, 2013

pelvic pain is so unpredictable

Well I am not sure where to begin with this post. I thought things here were going pretty well despite a few twinges of minor pain. That was until Monday when I fell in the shower. I think I either broke or sprained my toe and apparently put myself into a pelvic flare. I have been in major pain since Tuesday. I thought i had a UTI since the pain came on so fast. Unfortunately urine looks normal unless something comes back on the new cultures he sent out today. He gave me a bladder antispasmodic to help with my symptoms. Ditropan yet again which made me completely stop urinating last time I was given it to take. I told uro this and he said well I will cut the dose in half for you and give you the pediatric dose but I am not sure if it will work.
He said that If the medication does not work and there is no infection on culture I will have to go back to pelvic rehab physical therapy. I honestly feel that I have yet again returned to square one. I am so down and feeling worthless right now because I am so uncomfortable. I am not sure I can endure this all over again. thee have to be better treatments for this it is unfair that all of us who suffer with IC painful bladder syndrome what ever you may chose to call it have to go through this multiple time to have any quality of life.

I just feel like every time I am making any form of progress toward what I want to achieve which is comfort and quality of life things just come crashing down on me. PFD pelvic floor dysfunction another name for this crap yes it has a million names has taken so much from me and made it very hard for me to enjoy the things I used to love. I was just seeming to be getting back to a semi normal life and here we go again. I know that all people try to understand what this is like but you just cant unless you live with it. my doctor told me today that if my pain was that bad I would take what he was offering and go home and try it and rest.so I am guessing this is my option until he decides otherwise. and pelvic pt is again in my near future.

OH and you all may wonder how a fall can induce a pelvic floor episode? Well I am not even sure how that works evidently anything can trigger them I just go day by day and pray that I don't get an episode however my prayers were not answered this past week. exhausted and going potty at least ten times a day while awake and try to sleep at night and ignore the pain but I am hanging in there that's all I can do.

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