pelvic pain is so unpredictable

Well I am not sure where to begin with this post. I thought things here were going pretty well despite a few twinges of minor pain. That was until Monday when I fell in the shower. I think I either broke or sprained my toe and apparently put myself into a pelvic flare. I have been in major pain since Tuesday. I thought i had a UTI since the pain came on so fast. Unfortunately urine looks normal unless something comes back on the new cultures he sent out today. He gave me a bladder antispasmodic to help with my symptoms. Ditropan yet again which made me completely stop urinating last time I was given it to take. I told uro this and he said well I will cut the dose in half for you and give you the pediatric dose but I am not sure if it will work.
He said that If the medication does not work and there is no infection on culture I will have to go back to pelvic rehab physical therapy. I honestly feel that I have yet again returned to square one. I am so down and feeling worthless right now because I am so uncomfortable. I am not sure I can endure this all over again. thee have to be better treatments for this it is unfair that all of us who suffer with IC painful bladder syndrome what ever you may chose to call it have to go through this multiple time to have any quality of life.

I just feel like every time I am making any form of progress toward what I want to achieve which is comfort and quality of life things just come crashing down on me. PFD pelvic floor dysfunction another name for this crap yes it has a million names has taken so much from me and made it very hard for me to enjoy the things I used to love. I was just seeming to be getting back to a semi normal life and here we go again. I know that all people try to understand what this is like but you just cant unless you live with it. my doctor told me today that if my pain was that bad I would take what he was offering and go home and try it and rest.so I am guessing this is my option until he decides otherwise. and pelvic pt is again in my near future.

OH and you all may wonder how a fall can induce a pelvic floor episode? Well I am not even sure how that works evidently anything can trigger them I just go day by day and pray that I don't get an episode however my prayers were not answered this past week. exhausted and going potty at least ten times a day while awake and try to sleep at night and ignore the pain but I am hanging in there that's all I can do.

the waiting game is awesome not

Well I am waiting for prior authorization to get my right AFO.. It could take a couple weeks for it to get approved. I am hoping it is sooner because my ankle is starting to hurt. I am also still waiting to hear if I am going to A rumatologist. They still have not heard on one as the first one they referred me to said that they could not see me as there office was not appropriate for me we will see. I am going to ask her to redraw to see if the levels are still elevated. I am not sure if it could be related to endo at all so i will be talking to my gyn about this as well that all for now

update for me still so many changes

I got my casting for right AFO on Friday it went well. Now I am just waiting for the call to say that it is made and ready for official fitting. I am hoping it comes soon because my right ankle is hurting like the left one was but it is not a contracture issue I have been working hard to keep that from happening with the ankle exercises I was given.
I am having a tough time sticking to PT and cardio the last two days with my endometriosis hurting me. I know i need to stick to it however neasua is not fun to try and work through. I will be getting it done later today though after it cools down some as I don't want to miss too many days. I fear loss of mobility every time I don't do what I need to and that is not something I am willing to risk. I am only27 years old and want to continue to live my busy life as long as possible.
My primary doctor also increased my med for nerve pain to 600 mg three times daily so that is making me sleepy. It says that it can make you sleepy and that warning is very true. It is going to be a rough adjustment but as long as i don't miss a dose I am in less pain. I just started the dose change yesterday so I am not sure how it is going to go yet. the med worked at 300 mg three times a day for a week or so hoping for better results with the increase.