The illness I live with is: I have a few First is cerebral palsy visual
impairment Endometriosis IC
I was diagnosed with it in Endometriosis on december 4, 2009 IC on May
27, 2011
But I had symptoms since: Endo since the age of thirteen and IC on and
off since my first UTI around the age of twelve
The biggest adjustment I’ve had to make is:learning to take the cues from
my body and listen to what it is telling me
Most people assume: Im just using my ilness to be lazy
The hardest part about mornings are: Getting motivated
My favorite medical TV show is: hum not sure watch all shows on
discovery fit and health when im into watching tv
A gadget I couldn’t live without is: my heating pad for pain and my fan
for the next six months lol
The hardest part about nights are: finding the comfy position to sleep and
getting to sleep
Each day I take __ pills & vitamins:at least five many dats more
Regarding alternative treatments I: havent tried any yet
If I had to choose between an invisible illness or visible I would choose: I
don't need to chose have both and neither is any easier to live with.
Regarding working and career: don't work because of multiple medical
issues and too much pain.
People would be surprised to know:
The hardest thing to accept about my new reality has been: sometimes i
can't do the things i want to do because im not feeling up to it and this is
here for the rest of my life or until menopause.
Something I never thought I could do with my illness that I did was:make
a difference in many peoples lives by sharing my experience
The commercials about my illness: ha ha they are nonexistant
Something I really miss doing since I was diagnosed is: not being able to
go for daily walks
It was really hard to have to give up: used to do alot of babysitting for
friends till I was diagnosed then had to cut back because of the unknown
of the pain and surgeries.
A new hobby I have taken up since my diagnosis is: building jigsaw
puzzles and writting
If I could have one day of feeling normal again I would: just spend the
whole day with everyone and enjoy every minute of it
My illness has taught me: That I can over come many obsticles.
Want to know a secret? Endo has helped me to make many friends
But I love it when people: take the time to try and understand the daily
struggle i go through because they learn about endo and also others
struggles because I am ot the only one
My favorite motto, Never give up live each day like it is the last
When someone is diagnosed I’d like to tell them: hang tight its a long
journey but you will get through and you are not alone I thought i was for
a long time.
Something that has surprised me about living with an illness is: How
echausting it is
The nicest thing someone did for me when I wasn’t feeling well was: Just
sat and listened and just let me cry with no judgement.
I’m involved with I do my best to spread awarness of endo and iC through
support groups and writting about my expereince and also posting things
to my blog that pertain to ebdo and my experience
The fact that you read this list makes me feel: happy to know that others
do really take the time to read about others struggles thank you so much.
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