30 things

The illness I live with is: I have a few First is cerebral palsy visual

impairment Endometriosis IC

I was diagnosed with it in Endometriosis on december 4, 2009 IC on May

27, 2011

But I had symptoms since: Endo since the age of thirteen and IC on and

off since my first UTI around the age of twelve

The biggest adjustment I’ve had to make is:learning to take the cues from

my body and listen to what it is telling me

Most people assume: Im just using my ilness to be lazy

The hardest part about mornings are: Getting motivated

My favorite medical TV show is: hum not sure watch all shows on

discovery fit and health when im into watching tv

A gadget I couldn’t live without is: my heating pad for pain and my fan

for the next six months lol

The hardest part about nights are: finding the comfy position to sleep and

getting to sleep

Each day I take __ pills & vitamins:at least five many dats more

Regarding alternative treatments I: havent tried any yet

If I had to choose between an invisible illness or visible I would choose: I

don't need to chose have both and neither is any easier to live with.

Regarding working and career: don't work because of multiple medical

issues and too much pain.

People would be surprised to know:

The hardest thing to accept about my new reality has been: sometimes i

can't do the things i want to do because im not feeling up to it and this is

here for the rest of my life or until menopause.

Something I never thought I could do with my illness that I did was:make

a difference in many peoples lives by sharing my experience

The commercials about my illness: ha ha they are nonexistant

Something I really miss doing since I was diagnosed is: not being able to

go for daily walks

It was really hard to have to give up: used to do alot of babysitting for

friends till I was diagnosed then had to cut back because of the unknown

of the pain and surgeries.

A new hobby I have taken up since my diagnosis is: building jigsaw

puzzles and writting

If I could have one day of feeling normal again I would: just spend the

whole day with everyone and enjoy every minute of it

My illness has taught me: That I can over come many obsticles.

Want to know a secret? Endo has helped me to make many friends

But I love it when people: take the time to try and understand the daily

struggle i go through because they learn about endo and also others

struggles because I am ot the only one

My favorite motto, Never give up live each day like it is the last

When someone is diagnosed I’d like to tell them: hang tight its a long

journey but you will get through and you are not alone I thought i was for

a long time.

Something that has surprised me about living with an illness is: How

echausting it is

The nicest thing someone did for me when I wasn’t feeling well was: Just

sat and listened and just let me cry with no judgement.

I’m involved with I do my best to spread awarness of endo and iC through

support groups and writting about my expereince and also posting things

to my blog that pertain to ebdo and my experience

The fact that you read this list makes me feel: happy to know that others

do really take the time to read about others struggles thank you so much.

thanks

Thanks for all the positive suport sheila and amy happy to finally have so good news to share although the pain relief may be very short lasting but the six months that i will have is totally worth it for me. and unfortunately i am hoping for another surgery to follow yes sad that i am hoping for one but it is the only way to remove the endometriosis that has regrown over the two years since last surgery and I am majorly hopeful that they can take out the adhesion that is on my left ovary causing it to stick to my pelvic sidewall and uterus and unfortunately that will more than likely end in a partial hysterectomy with removal of that ovary and tube as it is very damaged and non valuable to my future baby making days it does not ovulate now and when it does it gets a large cyst on it when im not on birthcontrol called an endometrioma a cyst of endometriosis that fulls with blood ouch

update for teh past week or so

Things are going fairly well for me all things considered. Still having very little pain yay thankful for that. I had to take my dog to the vet on tuesday found that he has a double ear infection they also did testing to try and figure out whats up with his throwing up he does not do this all the time but thyey need tomake sure that he does not have an underlying issue. he goes back on november 8th for the results of those tests and a recheck of his ears to ensure they are clear. Lets hope they are so we can have a comforttable happy boy again.
I go back tot he GYN on the first and will update on that as well just trying to keep tabs on whats hapening with lupron and keep my mind refreshed my memory isnt so great on the lupron hope all of you are well.

emotional ups and downs of lupron have begun

this is the part of lupron that I really hate. the mood swings are starting. Im surprised that they waited lol usually i get them as soon as hot flashes start. My emotions are like a rollercoastr one minute im ok then ill start to fel down or upset or just plain iritable. the joys of menopause ore wonderful. Is it worth it for th pain relief yes right now it is for sure i just hate the ups and downs id like to say im ready for treatment to be over but im not I want the pain relief i have more energy right now than i have had in some time ive been staying awake all throughout he day for at least a week now so it feels really good and i can spend more quality time with my niece but the mood swings do pose a challange cause sometimes i get kind of snappy and she doesnt understand and i dont mean to be that way but it just happens.

another video courtesy of my endo sister barbra hull jacobs

endo awarness month is march but im battling it now along with so many other there is never a time that this does not affect my and so many others lives thanks for watching and please feel free to sppread the awarness as well they are on youtube

endometriosis suport vvideo

this is to help spread awarness of endometriosis which for me is the hardest thing to live with each and every day thanks for watching I did not make this video but shared it from a group that i am part of thanks again for watching

three days and counting

hot flashes are still horrible but I am still counting the days of no endo pain i am greatful for the three that i have had thus far. However im realizing that a good chunk of what i was blaming on endo was my bladder waiting for november first so i can talk to the GYN and see if she will give me a perscription for pyridium until i can see the urologist again in december. i dont want to go unless i know it is the specific person my appointment in december is scheduled with cause the first doctor well nurse practitioner was not kind at all so im afraid to call to try and schedule an earlier appointment. i should not have to feel this way but it is funny how certaain doctors can make it that way. But thus far the lupron is still my best friend and worst enemy best friend for pain relief but its evil with those darn hot flashes. Very excited that I can more than likely take my niece and nephew out trick or treating with my aunt with little pain this is making me want to cry not because im sad I am so greatful just to geel better I can not wait to see my guyn in november to tell her i am pretty sure she will be more than a little happy to hear the good news

exhausted already but good news

I had my foot appointment follow up this morning at 8:40 this morning good news is no further mention of heel cord surgery and no further follow up needed for the foot. Now to cover the rest of the title i am totally exhausted I slept for a half hour total all night last night because my hot flashes have begun. Boy I forgot how echausting this truly is I need the pain relief and it is worth it for the relief but it is certainly going to be an adjustment for me againso neeless to say I did not make it a full two weeks this time vefore the second phase of lupron began this is good cause i was not sure how long I was going to be able to stand the increase in pain i am glad that the hotflashes are here cause that means hormone levels are reducing and pain will too yay.

Kind of startng to feel like this is going to be the longest two weeks of my life

I know it has only been one full week today since i got my injection but I dont know how much more i can take this is emotionally and physically draining. it hurts right now more than it did before hand so i am glad that i have medication that I can use and that my doctor knows me well enough to know that i do not misuse it. i just want to start feeling better I feel really sad and kind of like im starting from the begining of the road agian.
i am so thankful that my gYn is so supportive and will stand beside me 100 percent in this fight. some of my family does not think that endometriosis returns and they say that I do not have it anymore or that i didnt to begin with and my GYN flat out told me to have thos members come to my appts and she will talk to them about it but I have my suport team which consists of mom my sister and a few others I dont need the ones who dont believe me and dont see how much i fihgt just to get through a day. It does hurt cause they are family but i know that not everyone can understand chronic ilness she said something about getting me some pics of next surgery so i hope that she does that so I can see what has been hurting me for so long now. i just want to be me and i feel so lost right now I put on the happy face but deep inside I am so afraid there is so much to think about every single day I dont think anyone can truly understand what endometriosis does to you unless they sufer from it themselves. I know i have suport here too and I am thankful for that.
Endo has taken so much from me and i do focus on that alot and sometimes that isnt good but some good things have come from it too. I am becoming a stronger more understanding person because of it I have met the most wonderful caring doctor who treats me with dignaty and respect and i have learned well how to advocate for myself when i do not feel I am getting what i need so endo is a curse and a blessing all rolled into one well I hope this didnt fill you all with negativity lol but just how im feeling lately.

Five days in and the pain has begun

As i wrote before there is an increase in pain before the lupron starts to shut down hormone production I am currently in that phase of the medication right now and the pain is not fun but luckily I know it will only last about another week and my doctor was good about filling my ibuprophen and tramadol perscriptioms so I can be comfortable not that everyone needs to know this but I am also currently in a bleed which for me is not uncommon with the first months of lupron hoping it will be my final one for a while so that is my update thus far and sorry for TMI but I want to keep record of my tough journey through my second round of lupron

lupron yuckies have begun

I am not having any menopausal or pain symptoms yet but have been very queazy and blah since like four hours after my lupron injection. tis is not new it happened to me after the others as well but they told me that I had a virus but i dont think so I think i get one of the less comon side effects of lupron. Or it could also be from my flu shot but i dont usually have much reaction witht hem besides a little fetigue so i will be bringing this up to My gyn on the first just to let her know but im not too concerned about it the second round just confirmed that the nurse was wrong and i didnt have a viral infection last time.

Lupron is in

i went in this morning to get my lupron injection and the receptionist knew me on a first name basis already lol only because it was her whom I talked to twice when i was trying to arrange transportation. i did get good news this round. it will only be two injections because each one has three months worth of medication in it. my first round I had a 3.75 injection every month so I am glad that i can have only two injection it burns more but it is lees needles which makes me very happy My nex appointment is november first but I plan to doccument my second journey on lupron here and I already know it will be a rough one so I thank all for their suprot in advance the pain will be begining to increase within the next few weeks because when they administer the first injection of the series the lupron has an inital stage where it increases the ovaries production of hormones but then it shuts them down for the remainder of the six months which is when the menopausal symptoms begin i will doccument more as it comes and again thank you to all of my dedicated readers

another OBGYN update

My doctor is the best. she had the practice call me the friday before she was due to start working there and get me an appointment for Monday which was OCtober third. So I am now back in the regular comfort of my own doctor thankfully. Things went fairly well being basically as i expected. We talked and decided on another course of lupron which is not my best friend but if it is going to take the pain away for a time than im in for it.
the interesting part was that the nurse came out to get me and said welcome to generations this is your first time here right but not the first time with Dr P i hear u guys go way back I just kind of laughed apparently she briefed them on me but hey thats ok it makes for a much warmer welcome. I got the routine sruff done and a flu shot and tomorrow the lovely joy of my first lupron injection will great me at 8:30 but to clarify i have had one course of treatment with lupron this will be my first shot of round two. I will be on it for six months yet again and then we are discussing surgery because she wants to see if the lupron will shrink the endo to make it easier to remove lets hope it makes something easier well that is about it for now i will document this round of lupron better han I did the last Im not going into it blindly so at least i know what im in for Im just happy tha tit will stop the pain for a while again as long as it works the way it did the first time that is.