Saturday, February 27, 2010

post to sheila

I know that you read my poem on here about my mother. In your comment you said that you only hoped malayna would look at you in that way when she is older> In all honesty I truly believe by watching how well you guys do with her that she will. I will be honest that there were time that i dispised what my parents and unfortunatly mostly mom had to make me do But now that i am old enough to hear about where i could have been had they not been the what they were I know to apreciate every aspect of it even the pain that I had durring PT scessions. All that i have to say is that if Malayna says sonething hurts durring a scession be sure that teh PT listens to her and if they do not I know you will do the advocating because i went through alot of pain because My PT't felt that thye knew what was best for me een when i said it was uncomfortable and for that I learned to hate PT. Now i try to complete it on my own and can't right now because of my hip but can not wait to get back into it it really does help with the muscle spasticity in my case.
Oh I was completely amazed with Miss malayna's willingness to open for the dentist. I was always put out by a specialist when i was her age and then when insurance stopped paying for that i stopped going alltogether because the tactile issues were just too much for me. Mow at the age of 24 I go when i should for the most part except for the couple exams i missed over the past year because of all of the other medical stuff right now.
I still have issues with stuff being in my facial area and with gaging but the dentist i have now is great about it. When ever i have gaging he will offer me suction and water spray and that really seems to help to relieve it. I always though seem to be really tired after dental appointments because of the increased anxiety that i have with them. it has gotten so much better but is still tough for me. I just wanted to offer my insight on some things and let you know how they affected me when i was younger. I will go back through and re browse your blog to see if i can cover any more ground with my experiences I hope you do not mind this.

2 comments:

  1. Thanks, Jenny! I don't mind at all, I actually appreciate it. Malayna is not able to communicate alot of things with me yet so it's very helpful to hear from someone who's been there and understands. I do try to be a good advocate for her.

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  2. it deffinately takes a special person you do a great job she is such a happy girl. she is also alot like me when i was younger with the colds and resparatoy stuff. i don't get it as much now but even today when i do it is a doozy.

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