a description of living with cp through some of my personal experience. i wish i had started it earlier because it would have been much easier but my goal is to help other understand the difficulties of having CP and how it can make you feel
Monday, September 23, 2013
change in medication yet again frustrating
I am really uncomfortable since yesterday with my bladder so i called urology to see if the urodynamics testing was a possible next step however they are not sportive of it even though they gave me the information about it and I feel it would have been a better choice they are pushing a new medication on me so this is the route i will take seeing as it is the only one being offered. I just wish he would have just outright said I will not do uro dynamics until you try this medication rather than giving me something that I feel would be more beneficial and making me feel as though I am not able to make my own choices in medical care just frustrated and uncomfortable and waiting for a prior authorization for the med yes it is that new and the rule is Two other OAB over active bladder drugs must be tried well I have done this with ditropan and vesicare neither are effective.
Friday, September 20, 2013
Had a very bust week this week
I had three appointments this week. On Tuesday i went to New England Rehab hospital for brace clinic so they could see how things are going with my AFOs. They do not have many concerns just a few with callouses that are forming on my feet and the fact that my feet are extremely dry. They told me that I need to work hard on keeping my right foot in a neutral and straight position when I am resting with no braces on as they do not want a contracture to form on the right side. If this happens it would mean another surgical procedure. I go back in sic months for another check and hopefully when that happens I can get some new sneakers. I really need them. My sneakers have seen better days for sure.
Thursday i went to see my OBGYN because I had alot on my mind with medical stuff that was not settling well with me so I needed some things explained. the stuff I needed explained was urology related but she is so good to me that she will take the time to explain things in terms that I can understand. She is also going out on maternity leave until January so I wanted to see her again before she left to have my IUD checked and just kind of a once over kind of thing. I go for my last lupron injection November 7th then i do not go back until February some time provided everything cooperates. Heres to hoping that happens.
And today I had an MRI of my lumbar spine because I have been having alot of low back pain. I always have low back pain with the pelvic pain but this pain is different It is making it so it is hard to stand from a sitting position and hard to turn over in bed along with other difficulties in daily life. Usually if the back pain is related to the pelvic pain if i get the pelvis to calm down the back will but it is nearly non stop.
I will be making an appointment soon with my primary doctor to let her know what has gone on with gyn and let her know that my ob wants me to look into trigger point injections for my pelvic pain and also to get a flu shot they also mentioned a test called uro dynamics that my gyn feels would be beneficial for me to have so it is going to be busy for me for a bit but for now I am taking a break Heres to hoping thing calm down for me soon.
Thursday i went to see my OBGYN because I had alot on my mind with medical stuff that was not settling well with me so I needed some things explained. the stuff I needed explained was urology related but she is so good to me that she will take the time to explain things in terms that I can understand. She is also going out on maternity leave until January so I wanted to see her again before she left to have my IUD checked and just kind of a once over kind of thing. I go for my last lupron injection November 7th then i do not go back until February some time provided everything cooperates. Heres to hoping that happens.
And today I had an MRI of my lumbar spine because I have been having alot of low back pain. I always have low back pain with the pelvic pain but this pain is different It is making it so it is hard to stand from a sitting position and hard to turn over in bed along with other difficulties in daily life. Usually if the back pain is related to the pelvic pain if i get the pelvis to calm down the back will but it is nearly non stop.
I will be making an appointment soon with my primary doctor to let her know what has gone on with gyn and let her know that my ob wants me to look into trigger point injections for my pelvic pain and also to get a flu shot they also mentioned a test called uro dynamics that my gyn feels would be beneficial for me to have so it is going to be busy for me for a bit but for now I am taking a break Heres to hoping thing calm down for me soon.
Sunday, September 15, 2013
the craziness continues
I am not sure where everyone has gone but I miss having comments to read. I hope that you are all ok and nothing serious is going on I miss Emma and malayna I hope that things are going well/ Any how an update on me. I am currently taking lupron again for my endometriosis and also trying to get my bladder condition under control/ We are discussing more testing on my bladder along with a procedure that uses acupuncture to possibly help control the pain also there has been talk of surgical intervention the device is called the interstin/ It is basically a pace maker for the bladder so that it stops the nerve impulses from becoming overwhelming, I also have had an appointment for low back pain and I am going for an mri Friday well I think that is about it for now/
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