Got my AFO yesterday needs some adjustments

I got my brace yesterday for right foot and leg it needs adjustments though. It pinches in the back behind my knee when i doing certain things and also causes two of my toes to get numb after a  bit of wearing it. I am supposed to go back in today when dads personal care worker gets here/ We shall see if it is strap positioning or what making this happen. I have never gotten numb toes from an AFO lol It doesn't seem tight or anything but I also noticed that my heel does not stay back all the time when I am walking which will eventually cause skin breakdown so I need to get that addressed.
I am also experiencing the burning in my pelvis again like endo pain. Very sad about this but I am going to deal with it until I can no longer stand the pain. I am not ready for lupron or surgery again. I just need a relatively calm year for now with endo I cant deal with all of the issues at once. I had to call my GYN because oddly enough my pelvic pt saw my lap scar and immediately told me I needed to have it looked at by the surgeon because it is extremely red. they are concerned with infection. Waiting to hear back from my doctors nurse as appointments were offered with my doctor however I could not get to any of them. I don't expect to be a VIP patient however I do expect understanding of my situation which this nurse had none. I love my doctor and my nurse but this was not my usual nurse.

I had my second visit for pelvic pt Monday. I have to pay out of pocket as my insurance doesn't seem to see the need for pt again with reasoning that I had it last October. Yes I did finish a round last October and continued with the stuff I was supposed to do but Pt requires a different approach after a certain amount of time in order to continue the relief. they approved one visit for this time which was the eval. they don't do much in that appointment besides muscle checks to see what is needed. I don't think they truly get the pt routine ugh thankfully the place i go for pt is understanding and want their patients to get care even if we are disadvantaged so they have given me a monthly payment plan and a discount.

fathers day why is it so special to me

this post is dedicated to my awesome dad. I never realized quite how special he is until nearly losing him to stroke last June. I knew i was lucky to have  a dad but having a medical crisis come between him and I has made me so much more grateful to have him. He isn't the same dad I had a year ago and probably never will be but he is here.

Each day is a struggle and sometimes i get frustrated trying to help him communicate what he wants or need but each day that is ended that he is with me is a blessing that i thank god for every single day. Watching my daddy go through this hell post stroke has made me realize that despite the fact that I have allot of medical problems I can still talk walk and do most things on my own I never dreamed I would see my dad have to go through something like this. He keeps me going with his strength and determination. Every time I have pain I say it hurts and that I am so uncomfortable however I have never experienced a spasm like he has in my life he is my rock my strength really my dad is my hero.

If i had half of his strength and determination I would be a better person. I am determined and have alot of dads qualities but he is stronger than me because he has pulled through having full function and loosing most of it I am conditioned  to deal with my issues since i was born with them. I really don't feel that this post is even enough to show how strong and determined my dad is. I am literally in tears writing this as it brings back all of the memories of that horrid early morning rescue call. I try not to think about it even though I am faced with the after effects every day. He has come so far in this past year from not talking at all to stringing together a few words. the progress is painfully slow at times but it is there I know now to always be thankful for the little things they mean more to me now than ever before.

about two months ago my daddy said my name for the first time post stroke and i nearly cried I asked mom if she heard him and she said no so i had him say it again.  My dad is so special to me i don't know what more to say besides I love you daddy and I hope that you have a wonderful fathers day. all of the materiel things In the would could be gone and i would still  be happy and thankful cause i have you.

song i like that is about dads

never heard this song but he words strike me as what my dad does nor me

I love this song i thank my dad for all his hard work and even the times he had to disipline me you shaped me to be the wonderful person i am today

round 2 pf pelvic pt this should be intersting lol

well no strange infections came back on the cultures he sent out so I am in the clear for any form of urinary infection however still in pain despite the medication and continued pelvic pt that I have been doing since i went the firts time. Really hoping that they can add some things in to make me feel better again. I want to be able to forget what a bad pelvic spasm feel like

Still waiing on Prioro aoutarization for my brace which hopefully comes soon as i am getting more pain in my ankle. I am hoping that once i get the second brace I can walk outside some without crutches but right now my ankle is to unstable to do that. When i hint uneaven ground it twists with no warning so the crutches are best right now. I have been sticking to the pt and recumbant biking despite how difficult it is some days. I did well tis month with the pain i have been having I only missed a week of biking