Well my year has not started the way I had hoped it would. This year has again been nothing but doctors appointments,. I was hoping for a better resolution for issues than the trial and error stuff but i guess that is as good as it gets,. I had to go to the doctors again today for a urinary tract infection this one is official lol she siad all markers for infection were present along with blood so the good news is it is not just my pelvic pain this time thank god. I would have cried had she said no infection as my bladder has been doing fairly well with being comfortable.
I was taking flexeril twice a day for spasms of the pelvic floor and I told my primary care doc that it made me way to sleepy so she siad to talk half the dose twice a day to see if it still helped with the pain without making me so sleepy if not she is willing to change it for me.
I am ready for a vacation life is just too crazy for me these days. My legs are bothering me a lot as well with pain in the muscles at the back of my leg and the ones in the front also my hip. i am officially going to new England rehab again for possible brace adjustments the fact that he left me in a solid AFO was good in the very beginning but i am starting to feel that it is restricting my range of motion that is about it for me for today it has been crazy with medical stuff here,.
I am feeling really upset because mom is under so much stress with all of our medical stuff I feel that there has to be a way to deminish her stress but I am not sure how yet
Dad is getting speech again for a bit to get him using his tablet for speech purposes which will be a good thing any good speech ap ideas for android suggestions are more than welcome miss emma any ideas lol thanks guys for reading I hope u r all well
a description of living with cp through some of my personal experience. i wish i had started it earlier because it would have been much easier but my goal is to help other understand the difficulties of having CP and how it can make you feel
Tuesday, January 29, 2013
Saturday, January 26, 2013
Im still hangin in
The craziness continues. the new medication she put me on for muscle spasm took a lot to adjust to but i think im finally starting to feel normal again lol. I got a really bad migraine that lasted three days but that seems to finally be gone. I can not see an actual chiropractor because my primary care works with a DO who does spinal manipulation so i am limited to using him because they do not refer outside of the practice. I am OK with this as it is covered fully by my insurance.
the other place that we were able to find that took Maine care i would have had to pay out of pocket for the initial visit and the six month follow up as my insurance does not cover those with a chiropractor. the person who i spoke to also said something about me needing to pay a membership fee to be a patient there so I am in a way very glad to have this going in my favor. Really hoping that getting my spine aligned will help with the constant dull ache in my pelvis.
I asked for a hysterectomy again and she still feels that it is not in my best interest because I am already starting to have thinning of the bones which is pretty depressing because i know that i will be suffering with this pain well into my forties. Really praying that once my time comes closer she will be willing to take the step and do the surgery. I totally understand where she is coming from however im exhausted from it all.
I am hoping with all hope for another two months of feeling just the dull ache which has pretty much became normal for me. I have scheduled my manipulation for the 6th of February I believe it is don't remember totally. I feel so lost in the midst of doctors its not a good feeling for sure this is not where i pictured myself being at 27 but I have to deal with what I am given. Depression has been in my court quite a bit these days which does not make things any easier for sure Im not sure f it is from being cooped in the house because of winter or because of everything going on or from the meds but i am not liking it at all
Thank you all of my readers for the support you give it is much appreciated.
Thursday, January 17, 2013
another updaate alot going on latley
I had a really tough weekend with pain over the weekend and ended up in the er on the 13th because i could not get my pain controlled here at home. I had another follow up with gyn on Tuesday the 16th and she put me on more medication for the muscle spasms and referred me to a chiropractor she also mentioned something about a pain guy at mercy hospital and injections of some sort not a huge fan of the injections but I will try anything that might help. I will keep you updated on how things are going. I asked for another surgery however she would not give me a hysterectomy because of my already thinning bones so im stuck with this for some time to come.
Friday, January 11, 2013
an update on things
Now that I have finally gotten access to my blog again I will update you all on how I have been doing. I have been having hip pain again and started physical therapy for that yesterday which means its really sore today but I am hoping that it will diminish soon. I am still seeing positive affects with continued pelvic floor therapy which is good. To Emma I didn't get alot for Christmas but that's OK with me I got what i really wanted a new i pod to replace the one that got dropped and broken and some clothes but the best part of my Christmas was that I felt well enough to actually really enjoy the day and all of my family.
also Emma yes i still have my brace that goes on my left leg I will have it forever now to keep my foot straight because if it does not stay straight I can not have any further surgery on it so I am making the smart choice to keep the brace on as much as I don't like it.
I finally got my yearly upper respiratory infection shortly after Christmas and i am still battling with it now but it is getting better each day. I had to be put on antibiotics because of the fear that it was bacterial since it hung on so long.I meant to post holiday pics but have not done so yet I am hoping to get time really soon but my lil four month old nephew keeps me pretty busy all week i am quickly posting before he wakes up for some breakfast
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