After nearly nine weeks I am finally starting to take independent steps no walker or crutches still in the annoying boot which is probably the reason it has taken me so long to figure out my balance but I am getting there brace casting soon I am actually excited for this one I cant wait to be able to lift my leg and not feel like I have a brick attached to it Ready to walk by myself with lighter equipment.
Speaking of equipment there is talk that dad may be coming home august 14Th and he got a brace for his right leg to help with his mobility his is way cool though the person making it knew he was a hunter probably from the likes and interests listed in his info and they made it camouflage colors green and brown so if he ever does return to hinting it will blend. I am very hopeful he will return to some sort of hunting but I am sure it will not be archery. I know some are not for hunting but it has been my dads passion for many years and he does it to help put food on the table nothing that is salvageable goes to waste I am hoping that I can get a neat brace I want mine purple and probably white if they have a pattern or something interesting I don't just want the plain icky stuff i have had in the past lol if I have to wear it Its going to be fashionable lol
a description of living with cp through some of my personal experience. i wish i had started it earlier because it would have been much easier but my goal is to help other understand the difficulties of having CP and how it can make you feel
Saturday, July 28, 2012
Thursday, July 26, 2012
struggling alot
They have finally mentioned the word home for my dad in the context that it will be happening sooner rather than just saying oh he will be home at some point I am very nervous about this but yet want him with us too. I am still having major trouble with my surgery. the boot that I am supposed to be in hurts me alot so I only wear it when I absolutely have to walk I know this isn't helping to get the pain down but I cant take much more pain its going on ten weeks of pretty near constant pain.
I get so exhausted just with the little bit of walking that I am doing My ankle is so weak now it not even funny. I know that eh surgery was successful to get the ankle and foot straight but I am kind of wondering if it was the wrong choice for me I just don't feel like things are going the way they should be some of my family expect em to be up doing house cleaning and all that already when I can barely walk from my house to the end of the drive to put my niece on the bus for her summer school program just lost for sure when will I be able to be fully independent with no walker? I am so beyond lost the good new s is the ramp should be finished on Saturday which is a big step in the direction of reading the house for dad so happy for that
Oh and i have an appointment with a new therapist on the second of august decided it was tiem for a change I am hoping this counselor is a better fit for me since she specializes in infertility and chronic pain I am not officially diagnosed as infertile or having fertility issues but with the endometriosis and the pollycystic ovaries i think the odds are stacked against em with that
I get so exhausted just with the little bit of walking that I am doing My ankle is so weak now it not even funny. I know that eh surgery was successful to get the ankle and foot straight but I am kind of wondering if it was the wrong choice for me I just don't feel like things are going the way they should be some of my family expect em to be up doing house cleaning and all that already when I can barely walk from my house to the end of the drive to put my niece on the bus for her summer school program just lost for sure when will I be able to be fully independent with no walker? I am so beyond lost the good new s is the ramp should be finished on Saturday which is a big step in the direction of reading the house for dad so happy for that
Oh and i have an appointment with a new therapist on the second of august decided it was tiem for a change I am hoping this counselor is a better fit for me since she specializes in infertility and chronic pain I am not officially diagnosed as infertile or having fertility issues but with the endometriosis and the pollycystic ovaries i think the odds are stacked against em with that
Sunday, July 22, 2012
Lets put an end to endometriosis
this is another endo awarness video I know it is not march but tis needs awarness all the tiem just like alll the other conditions out ther thanks for watching u will see me in here if u watch to the end im not quite the last person but im there lol this was made by ashley nicole for the endo the pain campaign
Saturday, July 21, 2012
walker and air cast pics oh and my foot is free sort of lol
Me on the icky walker hard work but here it is for emma as promised
Got the purple cast off in exzchange for this uncomfortable air cast not liking it at all
My foot looking like a flinstone foot
the foot again looks pretty good feeels pretty sore lol I got the cast off on Wednesday which i thought was going to be awesome but turns out I am in more pain now without the hard cast than i was with it. My foot right now feels like it did four days or so after the initial surgery right now so ready to not feel pain ugh. I didn't realize that i was going to be in this much pain eight weeks post op. i do not remember my first tendon transfer being this painful but he also did a tendon transfer and Achilles lengthening at the same time not the happiest girl right now but hanging in
Got the purple cast off in exzchange for this uncomfortable air cast not liking it at all
My foot looking like a flinstone foot
the foot again looks pretty good feeels pretty sore lol I got the cast off on Wednesday which i thought was going to be awesome but turns out I am in more pain now without the hard cast than i was with it. My foot right now feels like it did four days or so after the initial surgery right now so ready to not feel pain ugh. I didn't realize that i was going to be in this much pain eight weeks post op. i do not remember my first tendon transfer being this painful but he also did a tendon transfer and Achilles lengthening at the same time not the happiest girl right now but hanging in
Wednesday, July 18, 2012
cast pics of the purple sorry they are delayed
decorated with crayola twistable crayons lol it all came off but she had fun that was my aim
and again
and again
Tuesday, July 17, 2012
lots going on just doesnt seem to be ending for us all right now
The good news is my cast comes off tomorrow nervous excited but mostly wish my dad was home to be with me after it comes off he was so excited for the chair to be gone again and me to be walking we celebrated only having three weeks left the night he had his stroke I was so happy and he was just ready for it to be over with I let my niece paint my toenails now that i can move my toes as celebration and then all hell let go sorry but life right now feels hellish there has to be a heaven after going through all of this.
i am also currently looking for another counselor for a few reasons one being I feel that I need to be as close to home at all times as possible when my dad does come home the others I am not ready to disclose yet but probably will in the future. I am falling apart right now have not had any counseling in eight weeks because of my surgery and very limited phone contact doesn't do the trick.
there still is not much improvement in my dad yet but he is working hard to regain things there are some things that he is doing with assistance like transferring from bed to chair and chair to bed he has said a few words but they are still limited. still no movement on that side very unsure right now if he will regain any of that. all i want is my dad home and i feel like right now that is just so far away. well that is about all from my end here i will update again soon hugs to all of u
i am also currently looking for another counselor for a few reasons one being I feel that I need to be as close to home at all times as possible when my dad does come home the others I am not ready to disclose yet but probably will in the future. I am falling apart right now have not had any counseling in eight weeks because of my surgery and very limited phone contact doesn't do the trick.
there still is not much improvement in my dad yet but he is working hard to regain things there are some things that he is doing with assistance like transferring from bed to chair and chair to bed he has said a few words but they are still limited. still no movement on that side very unsure right now if he will regain any of that. all i want is my dad home and i feel like right now that is just so far away. well that is about all from my end here i will update again soon hugs to all of u
Monday, July 9, 2012
still a very long journey
I know I have not been able to fill u all in totally on what has happened but I think its ok to let u know now. My dad has been in the hospital since june 30th he had a major stroke so it has been totally hectic here and very empty with dad not home with us. I am so afraid for him still he is doing better each day and was moved to a rehab facility today. Ok so here is a totally random weird thing he was moced today and i got paper work saying that i was going to the same pplace to see the person in the brace clinic there kind of ironic huh lol Please continue to keep the family and my dad in thought and prayers.
the visiting hours at ht erehab place are so weird that i think the only time ill be able to see him is saturday and unday now so im a bit upset and frustrated right now but he needs to get better for himself and us I feel lost without my dad here thanks for keeping up with my blog and emma thanks for the posts and yes i still have a walker and will for a bit sweetie i still have not gotten the pics up But ill try my hardest
the visiting hours at ht erehab place are so weird that i think the only time ill be able to see him is saturday and unday now so im a bit upset and frustrated right now but he needs to get better for himself and us I feel lost without my dad here thanks for keeping up with my blog and emma thanks for the posts and yes i still have a walker and will for a bit sweetie i still have not gotten the pics up But ill try my hardest
Thursday, July 5, 2012
long week finally comming to an end
this has been a very long week for all of us things are going ok with the family medical issue. He is holding his own but is still very sick that is all i can say for now no huge changes as of yet hugs and thanks for the continued prayers
Monday, July 2, 2012
cast will be off soon yay
We have finally hit the month that the cast will come off. I have not been around alot latley because ther is soem family medical things going on i can not give full details because mom asked me not to give abny information on the compuuter so I am really focusing on keeping to her wish. But know that once it is ok to her for me to give info i will and i am medically well just alot of emotional things right now thanks for the continued suport in this battle with surgery and prayers are welcome for my family as well thank you for that
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