Phone calls keep comming docs arent my friends right now lol

I got a phone call from the Ob clinic the other day and the nurse said that the ob that was taking care of me talked to my usual ob who is not practicing right now and my regular doc told her it was fine for me to do another six months of lupron. this being said after i specificly told the gyn that i wanted nothing more to do with lupron. So it is sounding like that is going to be the teatment of choice or keeping my pain but we shall find out in october they wanted me to go in and start the treatment the other day and i told them no i am waiting to talk to my regular doctor in hopes of them having another option.

OB apointment update

As promised here is the OB cisit in a nut shell. i saw doctor this time which was good. We discussed my options wheich may I tell you are few and far between. They told me that they were willing to do another lap but as far as removing anything they would not know until they were in thre so i declined that option and the other option i was given was lupron again and also declined that. The reason being I had horrible side effects on the lupron and I am not subjecting my body to another surgery with out knowing that it is going to reliece any of the pain I am having. they told me they would not want to be in my position at my age well of course I already knew that one and told me that narcotic pain medication is not the solution which I already knew that one too. So all in all not much was done and I am currently waiting for my regular OB to retyrn in october so I can have a discussion with her because he offers more support and insight into what she feels would be most helpful the two docs the other day just totallk left it all up to me i felt so lost and alone it was almost unbearable. The only matter of fact answer I got is not total hystorectomy until at least thirty five really another ten years of this agony Im gonna need alot of suport for sure well thats about it for now hoping I get better news in a few weeks.

is it thursday yet

I am waiting for thursday really need to see the OBGYN the pain has started yet again. The cycle has been getting shorter and shorter. I just hope that something can be done soon because i do not want this pain any more for a while even if it is just a change in medications for some relief. Im not so sure i am ready for surgery again but i guess if that is the only method for relief than we will go for it. I am just struggling to understand how I am in this much pain again after such a hard long road to get six months of medication in hopes of relief only for it to return already. i feel like i am becoming lost in the endo battle again but i will find my way out and through all of these struggles.

welcome the month of september as IC awarness month

as most of my followers know i have IC intersistial cystitis. this is a very painful and debilitating condition. it causes me and many others to suffer with pain pressure freequency and urgent need to urinate. I have had a lot of bladder infections in the past but in recent years I have had symptoms with negative urine culture results and that is when it became evident that I needed further investigation into what was going on. My OBGYN did a test called the potassium sensitivity or potassium chalange test. this is a very painful test for an Ic patient. Two different solutions are infused into the bladder via catheter one is regular water and the other contains a dilute potassium solution. In the normal bladder people should not be able to tell the difference between the solutions but in my case i was imediately able to tell my doctor which one contained the potassium so it was determined that I have IC. this desiease is very contrivertial and there are still some doctors out there that do not believe it exists but I am a survivor of this condition it is real and it is painful it is not in our heads we know our bodies and how they should feel bladder pain is not normal. i hope that this helps to spread awarness I am not a medical professional and i am in no way trying to be I am just trying to spread awarness of a very painful condition thank yyou for taking the time to read this post.