Another appointment today

I feel like a darn test dummy woth everyone polking at me. i had an appointment with one of the two docs that i see at My primary docs office not my primary though. this was for follow up after the ER visits. She said there was not much more she could do as i had anticipated but gave me a different medication for neasua since it is returning with avengance since I started putting solids back in there and told me to call her and let her know how its working. I am just at my witts end with everything
Here is her imput on what it most likely is and deffinately not what I wanted to hear. I am not angry with her she is very good at what she does and a nice lady so let me contimue she has a stron suspission that it is yet anoter adhesion or scar that is being caused by endometriosis causeing the paun. she is hoping that it is not. I will not know unless I have yet another trip under the knife as they can not see scar tissue with any of the fancy machines out there lol so I will post as to what is next after i see the GYN I doubt another surgery but if it continues like this I don't know for sure because she does not want to do any more due to the fact that surgery itself causes scarring but losing nine pounds since july is not the best for me either

It is done and over with

Well things went well yesterday. I had the loopy meds lol the only thing i felt was cramping near the end of it and then by the time he finished and i got to recovery I was asleep. They were kind of concened that it worked so well. Thankfullly my aunt has been through it with me before so she knew what to expect. I had an upper endoscopy two years ago at the same location with the same DR.
Any how they did not find anything wrong but took biopsys to make 100 percent sure. I am kind of frustrated cause I am still at a loss for my lack of apitite and pain when i eat. But at least its not colon polyups or cancer so I am deffinately relieved no colitis was evident cisually wither

waiting waiting waiting

waiting for the appointment is not the best part. I want it over with So hungry yet when its over ill be lery to eat because of fear of pain. just don't know anymore im nervous either way just want it done and over with well thais it for me for now ill post to let you guys know how I did

remind me never to do this one again lol

Well the laxitive prep has started. Oh my god yeah this is deffinately not fun. I think if it comes down to it i will keep my stomach pain rather than do this again. Liquids since sunday now push everything out even thogh there is basically nothing in there. taken two dulcolax this far at five have to mix miralax with 64 ounces of gatorade the 238 gram bottle and then drink a glass every 20 minutes until gone and then at nine two more tablets should be a sleepless night lol.
oh and sheila was it you who mentioned meralax in an earlier blog post if so yeah I can say that as of today I have officially heard of it and used it lol
I am suposed to continue using it if i do not have regular bowel movements as well. Should have just gone with the gut instinct to try it after you mentioned it. Oh well I am now unfortunately it is for the colonoscopy prep

liquid diet has begun for me

Well its sunday and today starts the liquid diet in prep for tuesday. Nothing to eat until after the proceedure. Normally it is one day before but with me they made it two because of my history of chronic constipation as they put it so it should be fun for me not lol. I went yesterday to purchase all the stuff i needed and also purchased my new glasses. they will be ready the ninth of october
It was an interesting time I walked tot he vision center of walmart and mom handed the perscription to the lady and she was like oh my god this is a hefty perscriptin who is it for and mom pointed to me and she was like you can see me. I told her yes and then she asked me what she looked like and i said she looked like her and than she asked me what her name was and i told her that I could see her but could not read the name tag. So she got everything together and told us the price of my glasses. quite expensive since insurance does not cover them. almost three hundred dollars because they have uv protection scratch resistant coating and transitons lenses. All of whih i need due to glare issues.
I tried on so many pair and most of them i did not like so i finally settled on a frame. I also have to have the polly lenses because they are the thinest lenses due to the fact that my perscription is so strong, not much else to report right now
I was really honestly shocked at the reaction of the vision center employee. I don't know any differently this is normal for me i guess my vision is pretty bad lol Oh well I can deal with it have for 24 years now

im still here lol

I had my eye appointmetn yesterday that went well. I have to get glasses and go back in a year to see how things are going. Had the GI appointment as well I have to have a colonoscopy to see if it is my colon or not. If not i guess they are marking it as refered pain from my endometriosis but I have never had pain in my stomach and bowels like this. I am at least able to eat now but it is still uncomfortable have not taken any medication yesterday or today because i do not want to have issues with being abloe to stop using them I can't say becoming adicted because i have pain but I have had that issue after a surgery and will not forget it and will not do it again I am so tired right now I just need a break again.

another trip to MMC

I wnet back into the hospital yesterday after I talked to my primary and she said that she could not see me unless I went into walk in and saw someone eldr do basically she was unable to see me and if I could not wait to go into the ER so that is what i did. I went into the ER and they gave me meds and medication to take to get my bowels moving again. i got a little relief but not much GI appointmetn tomorrow eye appointment today everything crashes down on me at once yet again

horrible weekend continues and yes its tuesday

tomorrrow should be an interesting day for sure. I have an eye appointment along with severe pain still. I am still on the pain medications waiting for return phone calls from my primary care doctor and the GI specialist debating weather or not to head back to the Er short post gonna go take more meds and sleep my life away its the only way i dont hurt right now miserable is the word im using but its more much more than that

horrible weekend

My pain and cramping got so bad that i went to the er again by rescue. I was honest with everyone and told them I had endometriosis and that is automatically what tehy thought it was. nope it is not because endo pain does not get worse when i eat if I am neasuated that does but the pain was horrible pain every time I would eat or drink. and for the most part still is. well still have no clue what it is they did another CT and u;trasound and then said well ther is nothing more that we can do. They said that no GI doc could see me until monday and zI could not stay there because i was not bleeding from my stomach. Morphine was not touching the pain for anything until they gave me like four or five doses. Oh well I am home for now On strong pain meds and antineasua medication which i need to go and take now before it gets too bad just ate a soft taco shell I have had that a yougert and bread one slice all day and sips of grape juice yeah nothings wrong my butt here we go round the hellish circle of docs again

its finally thursday

this week really seems endless. I am exhausted and in pain yet again with my ovaries and palvis and yes nladder. basically my entire belly from belly button down is burning to no avail. My back is going along too. Lets just say I know no one here who follows has endo but for anyone who does don't let your doctors push your complaints to the side.
My Ob is really good and thankfully does not do that she takes eberything into consideration even the things that dont concern her like my legs and spacticity. Well I am going to go and try and get some dishes done i have an eye appointment comming up on wednesday kind of looking toward knowing eberuthing with the eyes are good minus the stuff we already know i have nystagmus and astigmatism.
I also calle the doc to get my migrane perscription filled again and they had to change it becase insurance requires that their members take imatrex before any other medication for migraines. dont ask when they changed that one lol but here we go with another medication lets just hope either it works or i dont get a migraine lol

err life as usual nothing goes right for some reason

Well i went tot eh dentist this morning fully prepared for a cleaning and an exam to be done. that is what was scheduled on the previous visit for this appointment get there and in the room before they tell me it is only my ecam. Had I known that I would have changed the appointment so I could have gotten both done at once.
Now I have to go back yet again for two more fillings and my cleaning and then yet two more times to have the crown completed. I am not in a good mood to say the least today and on top of the not having things go right I get queasy stomach on the way there every time but this time i litterally got sick and ended up throwing up. that is the huge reason I ask for afternoon appointments there because it is not as bad as in the morning with my reflux and stomach issues I want to honestly either scream or cry right now because I feel that nothing i ask even matters anymore I dont ask for specific things to be a pain in the butt it is to make it easier on me and everyone involved

official urine results are in

i got the call today that the urine culture was in. It was deemed contaminated by having too many of the normal bacteria that are found in the lower region in it, u did the clean catch the way I alwayshave and trust me ive dont many and this is the first one that has come back contaminated so i have not a clue what went differently this time but any way i made the right choice not taking the antibiotics because it seems to be letting up some, I know what to do sometimes lol, i tole the nurse practiioner that i was feeling a bit better and she said to stay on the antibiotics and then i was like i didn't start them because i do not want to become amune to them and she totally understood so now once again i have my confirmation it is most likely the endo or to be determined ic later on in october so we shall do the waiting game together again, I would love to go back to august i had no urinary symptoms just the cramping whih is annoying but at least i dont have to pee all the tiem with it lol

frustrated yet agian

still having ankle pain which i can live with because i do not want another trip to the ortho. On saturday after the benifit i started having bladder pain again. I went to my primary today to see if it was an infection and they said right now it is not shoowing on the dip but there is blood in it so she said that i needed to contact my Ob to see if they were going to do the test for IC and if that is negitive to see on getting into a urologist. i am on antibiotics until the dip culture comes back. this is rediculous. I just want a break for longer just leave me alone please. I want my life to be consistant and not so up and down. I miss my old life before the endo for sure well beofre it got to this point any ways

holly cow busy weekend lol

I did end up going to the benifit yesterday it was fun they had live music and plenty to eat not that i did much of that lol. I got to visit with another friend that i have not seen since high school. it was great.
After the event i went to my sister's house for the night with my cousin and niece. then today i spent the day at another friends house. I don't usually get to do much buyt man when things happen it is all at once for me lol. all in all a great weekend but I am glad to be home finally lol. Now i am relacing and realizing just how much this weekend has taken out of me. We went apple picking today it was cool only the second time that i remember going may have when i was younger dont remember though. Well im gonna go to bed really soon my nephew is spending the night with me so I better get soem sleeep! Otherwhise he will be ahead of me oh wait he usually is any how but it is worse when i am tired

ughhh

Im feeling kind of frustrated again. i have been having ankle pain on and off for a couple weeks now and i have really been debating weather to go to my primary or do the ortho again. I am so confused. I dont want to go if they are just gonna say there is nothing wrong. i hate that It is so frustrating.
i called the ortho last week and he was out of state so not much help for me now it has been another week and i just do nt want to call again. uggh what to do what to do. I am so tired of the pain comming out of nowhere and having no one able to help figure out what is up. otr for that matter finding ways to the docs that is tough too because everyone has their own lives that need to be lived and I deffinately understand that .
I am planning on going to a benifit tommorrow for fy friends uncle to raise money to get him a power wheel char. Not sure how long ill be staying but i will be giving my ten dollars reguardless of the length i stay it all depends on how i feel