final post on yucky matter i hope

Well i told everyone that this blog is on my cp an oany other midical issues so this is a part of my life and i think manu others lives who are living with Cp. although the CP is not the only thing that contributes to the issue. i just got through my bout with endometriosis abdominal pain as well so that did not help but also having muscles that do not respond normally is not good either.
any how i finally got relief after six stool softeners a dose of metamucil and patience that was the hardest part. being so uncomfortable and just having to wait. i do not know how mayny read my blog faithfully besides sheila but i am putting this out for those who want to know about CP. I feel that this issue is getting worse as i get older and it is so difficult to daal with sometimes. i do not know for sheila how Malayna is in this department but mine has affected me my entire life it just so happens that this one was a really bad episode lol sorry for the long post on pooping but I hope it will bring answers to someone else out there

It goes from one thing to the next for me

this is kind of a personal thing but it goes along with having CP and so does iBS I am pretty sure. I was up most of the night with stomach pain and discomfort. i feel really quite uncomfortble and have been using stool softeners and metamucil since last night and it does not seem to be working so well. i just honestly wish that i could get a break. i do what the docs tell me to do and still wind up in the situation I am trying to avoid boy how frustrating i just want no pain for a while well ok more than three days would be nice the nuva ring seems to be doing the trick for the moment so let's hope it continues.
i know if I end up needing a doctor visit for thuis they will try and push it off as my endo at my PCP so I am just praying it will break on its own. I am so tired of knowing what the discomfort is from and being told that it is from mt endometriosis they told me that the last tiem i had a urinary infection until they got the dip back. then i got put onto antibiotics and apologized to and oh you do have bacteria in your urine you need a follow up urine dip to make sure you are infection clear oh well it is all just frustrating I hope i am feeling better soon. I am dog sitting this week for my aunt because she is going away so I just hope it will leave me alone before monday

appointment went well

the main reason being i had my own doctor. that makes all the idfference in the world. i was not bomnarded with information again, I was able to discuss all options with her and offfer my reasons why i did not want them. she agreed with most of them.
We discussed depo provara
here was my response I do not think that is the best option because of bone density she then asled well what makes you feel that bone density could be an issue for you my answer well the ortho said that my hip bone looked a little thin on x ray then her response was nope not for you no broken hips under my care.

then we discussed the IUD maraina I just plainly told her I did not feel comfortable with that option at all so it was dropped right there.

then we discussed the birth control pill which as stated before was going to be my choice, she did not feel comfortable with the pill because of my boarderline high blood pressure and the fact taht i was on them before and they did not really help but was going to give them another try.

then she threw in another option that i had heard of called the nuva ring and said does the pill still sound good. Nope i want to give the ring a go first. So that is what i am currently on. I think this is just luck but since putting it in yesterday afternoon when we finally got back i have had no cramps.

I am just so happy that my doctor understands where i am commming from and is welling to listen. she did the calculation on the paper work that i was givven and i have a moderate risk of Having IC a chronic inflamation of the bladder so if the palvic pain does not stay gone with the ring the next step is to get a confirmed diagnosis of IC I do not want to do that but if it means pain relief i am for it.

Teh only way t o get a confirmed diagnosis is to be catheterized and have tow solutions inserted into the bladder one with saline and the other with potassium. If the potassium give significat pain that is a confirmed positive. lets just hope the ring does the job and most of the pain was endometriosis related.

appointment tomorrow for the endo and spuradic bladder pain

Well, let's see how this one goes lol. I am going to discuss options romorrow with my ob so we shall see what she thinks I know what i am going to push for and pray it works this time. i want to try continuous birth control it sounds like the less invasive of the options so I hope it works. i feel alone honestly right now. i wanted so much for mom to help with the choice but she is unable to go to the appointment yet again so i am going with my sister who is very understanding and may offer her insight which will help but it just is not the same as having mom help me.
this has been one of the hardest things in my life to date. It makes me have so many questions on choices i have made to wait on having children, the ob continues to tell me i have plenty of time but in my mind i continue to ask myself if i really do/ I know i am not ready for them yet but it honestly makes me think on my choices each and every day. I feel really confused but i am dealing with it as best i can and trying not to let it get the better of me.
I am having mild pain again. Should be due for another demon bleed soon but who knows another fun aspect of endometriosis never knowing what is comming my way. Well i will update on the appointment and put the answers to my ton of questions well some on here so people know whats going through my mind and better yet so i can keep track of the events of this lovely condition. I know this blog was suposed to be all about my CP but honestly that does not take precidence in my life over the endometriosis.
I am just so accustomed to it that i do not think about it and it does not really but a restriction on my life. Yes ther are things i can do things i can not do but that is the same with everyone. I walk differently so what sometimes i talk differently especially if I am tired oh well the ones who really care know how to help me thorugh those times. Just something i have become used to living with. That is what my cP is a part of me it is not who i am well that is my post for today I covered my feelings on so many issues sorry and Oh yes another one I am taking my protonix for reflux twice a day for the next week to try and get it under control because she thinks that is what was causing part of my sore throat, i think she may be right because there is not so much burning in there now but im still not feeling 100 percent yet. Oh well just another day in the world of Jenny hi malayna and sheila hope miss malayna is having a blast at school and with her aqua therapy i want to join her lol in the water any way ha ha i have not been able to get entirely wet all summer because of the temperature of the water and the cramping and spasticity

not strep

i have something going on but it is not strep. another lovely viral thing so much fun. oh well relief is no antibiotics means no other complications to but the endometriosis any its doing pretty good right now yay for that I had a tough two weeks now its time for a break yay so happy for that one. i needed it

its been a long week

i think i may have strep throat now as well. i am going to see my PCP later this afternoon to see. i have a huge headache too and cant relax right now because i have two little ones here until later on. it stinks but i will get through it as i always do. It is not fun. any how that is the end to my long week

update for this week

So far so good for the week. My niece however is sick she has strep throat. Hope to get her feeling better soon she has been pretty cranky lol. It means so much to have suport outside of family and I really apreciate the comments that i reciece on here. So far I have had no further trips ti the ER and not needed pain meds in over a week lets hope i do not get another bleed before the 27th seriously. That is when the pain is really horible is durring those times. it is such a relief not to feel severe pain right now. I am nervous about the next part of the plan though because the only option that really sound ok to me is the continuous birth control but i have major fear that it will not work well so we shal see. i am extremely aprehensive of all three other options so I guesss it is me an dmom tag teaming Jenny with our questions and then deciding so nervous already

feeling pretty good again for a few days

Well good news the cramps have subsided and hope they stay that way till the 27th i am not pain free I feel like ther is a match lit on both of my ovaries but at least the cramping is milder for now. i can walk cause it is nto shooting down my leg anymore yay to that one. I definately miss the few months that i had no pain but that is in the past now so it is time to start another round o fthe battle I can do it i think lol im gonna give it my best shot that is thanks fot the suport sheila it really helps.

OK her is my trip to the OB clinic in a nut shell

Went in got vital signs done wow your blood pressure is hing in some pain today.
Yeah I am well it shows.
Ok now you can have a seat in the waiting room
got called in
medical student guy comes in is it ok if I talk to you and then bring the doc in sure why not
Doc omes in asks fifty million questions and then says well here are your options and gives me a bunch of papwers to read
My options are maraina
continuous birth control
Implanon
or peop provara
nthing was done for the pain um was that not the point of the visit or so i thoughtI guess not now they are trying to figure out if my bladder is involved in causeing some of the symptoms the more i deal witht his the more confusing it gets.
i am so confused and presented with so many options right now i do not know where to go. Still have to go back and see my doc on the 27th I hope she is more helpful and i hope she can make people understand why I can not have a hysterectomy!!!!!!! i have explained it and everyone just keeps gravitating to it again and again saying that ultimately tha is what is going to bring relief. how is it going to bring relief if she can not remove the organs that are causeing the hormone production because one of them is scared to my ureter. It is so hard to make others understand what I am forced to understand each and every day all the while having to deal with the pain well thats my day in a nut shell hoping she can help me make a final decision on the 27th ahhhhhhh there i feel better i think

been trying to enjoy life

Well despite the pain i have still been trying to have a life. it is not easy most of the time. i have gone to the river a few times this week with my niece nephew sister and mon. It helped the cramping the first time the sedond though i had to get out because it was too cold and increasing my cramping and spasticity. Liked the water while it lasted though not long lol. I hater cold water it makes it hard to walk if it is too cold but yet I am a water bug when it comes to being warm enough. It is urgent care day for me today yep i will update again on how that goes not seeing much happening but we shall see

I need a break from it all

Well this week has not been good for me at all. i started having pain again from the endometriosis the end of last week and ended in the ER on wednesday to get some help getting it under control. Going to urgent care at the OB clinic monday for further assistance until i can get in to see my regular ob. This is not a happy tiem in my lofe i just started gaining so much freedom back Wothout the pain but basically as soon as the last lupron shot was in it was over with between the fifth and sixth i had some spotting and cramping but since the sixth one have had two bleeds and some unbearable pain at times. I just want my life back I am so tired of pain. I have told her that I do not want children but she refuses to remove my reproductive organs first off because of my age and secondly because one ovary is scared to my ureter. i feel that my age should not be a consideration I know I do not want children especially if it involves continuing to have this much pain for that possibility to come I know I would be a great mother and have already proved that I just want a pain free life again so I can enjoy my tiem rather than being depressed or on medication so I sleep all the time is that too much to ask for, I am just so frustrated right now.