Still doing great with pain but now nervous because of a dental appointment comming up

I have a dental appointment comming up for my root canal on tuesday and I am so nervous. i have had plenty of fillings but this is different and I do not know wht to expect at all it was not really explained to me at all because when I was suposed to see the dentist who was originally going to do it so he could explain it I found that he left the practice so needless to say I am kind of in the dark with this one. Very nervous which does not help anything at all

unusual feelings for me lol

i have had a really great few weeks lately since pt. I am actually starting to get bored more often now and want to go do things to occupy my mind. Basically the computer is no longer cutting it for amusment lol. i am glad of that actually now it is just time to figure out the activities i am able to do. I am still afraid to push it too far. I want to make the no pain last for as long as possible. Getting back into things slowly.
i had my appointment with My counselor today and she is even noticing how much happier I am even with everything still going on. It is still kind of shocking to me im getting used to no pain again and loving every minute of freedom that I have. i missed it so much. It is amazing how much physical ilnees and pain can contribute to depression seriously it goes hand in hand for me as well as so many others.
Well in other news for today i am currently working on a project for a baby shower gift for my cousin but it is going to end up being a birthing gift since her shower is in like a week from asturday lol. it is a cross stitch quilt. I have been working very hard on it but can only do so much of it because i can not thread the meedle because of my visual issues and habd eye cordination and the lovely difficulties of fine motor skills because of cp. its ok though I am thankful for the things i can do. learned fast not to dwell on the can'ts in life because in reality I can do what i put my mind to althouhg it takes longer. thereading a needle though may just not happen and i am fine with that. Family is grat about it I love you mom and auntie for all the help and suport you give me

Post to sheila

hey sorry to hear you have been underthe weather. So far the improvement has lasted witht he hip but now my entire body aches because of all of this heat and humidity. Adjustments to this kind of stuff have always been tough for me and are not gettig easier with age. gotta love getting older. Hope that your health improves fully soon ive missed yourcomments i look forward to all of them how is malayna doing with everything/

feeling beetter

Well as i said I had my last session of PT on tuesday and am still kind of dissapointed that I had to stop going but the good news is that while I was there for my last one he was streaching my leg by pulling on my ankle and something near my hip popped and now it does not hurt anymore. I am thinking maybe it was just starting to move itself out of place but it was not fully out or out enough to be visable on an x ray either that or a tendon was really tight not sure but I am feeling better so that is great. I hope it lasts a long while At least a year until I can get more PT for my hip lol To sheila I hope all is well with u guys have not heard from u in a bit

update not so great though

I am kind of feeling down right now. i just got back from mt second and evidentaly final pT apointment for the year. He was hoping that I could get up to six because of the Cp and mobility difficulties but the insurance was not willing to cover anymore so now I am going at it solo again. this is honestly how i feel about it. if the insrance companies do not pay for adult PT for those with disabilites than why is it pushed upon us so much in school setting and with a pT there to aide in our streaching. I feel that we should be able to get Pt services if we have disabilities like cerebral palsy at least one tiem per week covered by insurance.
I feel that since i have reached adult hood everything has just dropped off the planet about My Cp when i was younger my entire life revolved around it and now I can not get the assistance i need as an adult. something in this workd needs to change to allow for those of us in need to get what we need. I am so frustrated right nwo because I feel that no one besides my PT and fellow friends with Cp really undrstand. I feel like we have to fight for every thing that we have and we still do not really get the things we need. Well that is all for my venting today i will just have to do my best to stick with the program he gave me for home but it is not th

starting to feel some improvement

I am feeling some improvement in my hip with PT but I am still nervous that there is something else going on in there. It is just a gut feeling I have. I really hate this feeling but unfortunately when I have the feeling it is true. The last time i had this type of feeling it was for over ten ueats with the endo and finally they found it.
i just am hoping this one is not for real and nothing more is going on I hate knowing my body as well as I do. I feel frustrated when others tell me ther is nothing going on but yet I know how I feel and it is not how i am suposed to feeel.
I hate the fact that in so many aspects all doctors compare me to someone normal. Honestly is there a person that really fits that out there we are all different. Have not had any further appointments but just venting my feelings as they come through. i have been sticking to my PT faithfully for the ast weel. It is really tough and tiring and sometimes I feel like I have little support. That makes things so much more difficult.
the other day when I was doing them the dog decided he wanted to be a brat and play attack me that made things really interesting. He tried to steal my band that i was using for a treach and I had my dasd saying get her lol yeah PT in this situation can be interesting. It was funny but in the situation I just wanted to get them done whe all know how that is.
I have a mojor fear that the pain is going to return though. it is so hard to live in pain for so long and not have the fear of it comming back. i am afraid both the hip and endo pain are going to come back full strength on me. i still have hip pain and poping but it is improving slowly. I am honestly hoping this is the answer because if not I have to live with the pain for the rest of my life as there is not much more that they can do for it.
sometimes i find myself wishing that one thing would come easily for me. i feel that everything I have attained has been fought for in soem aspecy. wel that is about it for me for now faith just came in so I have to go now

first Pt appointmetn down

Well the good news is my first appointment went well. I told him that i have been suposed to do cirtan streaches for a long time but it is toiugh when I can not find the time I need to stop using that and find the time though. He was surprused at how honest I was and actually said to me OMG you are very honest. Seriously what is the point of not being honest. I was doing them every day back in highschool and being told that I was lying to the teacher's and the Pt so I might as well tell the truth now and fess up to the fact that no I do not do them regularly now. I hae not been dishonest and do not plan to start now with anything. i hated the people in school that acused me of not doing things I was saying I was doing and honestly was completing. i can not help if My mobility was not greatly improved by them after so long of doing the same things it kind of tends to dwindle down and just get to the point of keeping it there not improving anyomre. they just said I was not doing them and left it at that even though at times I was in tears insisting i had done them and told them to call mom and they refused. I hated Pt in school but do not mind this one.
His name is Mike Downing and he seems pretty cool although he makes me work yuck lol. Thats no fun but needs to be done I hope i will get rewarded in the end with less pain. i am not sure how many more sessioons I will get he is going to see if I can get six so that we can have a few more followups and he can make sure I am getting improvement.
Right now I am pretty sore and tired. It's alot of work and only gets more tiring as i get older. Sheila whatever you do don't let Malayna slack on PT i did and I am regreting it now. It is hard for me to admit but I did them regularly when I had someone pusing me to and then once that was gone I stoped. It is important to keep reminding her to do them and be there for her through it all any way that is about it for me today my next session is on May 18th I may update again between now and then if something comes up and the PT said that sometimes people can have an impingement and MRI will not show it so I do not know weather it is there or not. I am glad that i have someone willing to help me thorugh this again. I did five minutes on the exercise bike and that was tough. I used to ride a bike in younger years but lost the balance to be able to now so it was very different and actually i was happy to do it even though it was tough. That was my favorite part of the Pt session that and the talking lol i like doing that once i get to know someone. he knew one of My old PT so it was kind of cool they are neighbors lol don't know if that's good or bad ha ha just kidding I liked Cherry.

another appointment down but with two more comming for the same thing

this dental stuff is starting to drive me crazy. As i said my other dentist left the clinic for some reason hoping for his sake a better job oppertunity but do not know what actually went on. so i met the new dentist today. His name is Dr. Sawyer it's going to take a bit to get used to another new person messing with my mouth so it will beinteresting again.
the positive thing is that i had the same dental assistant that has known me from the original center in Sandford so that makes things so much easier. I can open up to her and she knows how to help and what i need. She switched patients around some so that she could be wih me because she knows me and my specific needs thatnks Liz you will not read this eather but I am thankful for you even with the nasty tasting stuff u stick in my mouth lol
I still need the root canal but need to take another course of antibiotics first because it is getting infected in tehre again. and the root canal now may or may not need a crown i guess it will be based on his choice with that. if it does not and it holds great cause then i can use that money to get my exam abd cleaning done another 107 dollars. maine care is not too helpful when it comes to dental for adults but thankfully they cover emergency oral ecams. i actually got told that i had to schedule my full eval because all I have been havign is EOE. Taht tends to happen when I have tooth pain here yeah things sometimes bug me that should not but this has been and will continue to be a long week. firs of two PT sessions is tomorrow so i will update again on that later on

Post in response to Sheila's comment

The last pt that i had no one was allowed into the sessions becaue of insurance liability issues or something of that sort so I guess that would most likely be the same here as well. the only person really willing to learn anything to do with it is mom but she has to take dad back and fourth to work and does not have the time to go with me.
I was also orriginally diagnosed with bursitis but the pain just kept persisting and that is why i was refered to the orthopedic and he said that i had a bump in my hip bone that was causeing ectra blood flow to that area revealed by a bone scan and said that the only way to tid the pain is surgery.
then he did the MRi and basically said there is nothing but said things to the effect of the socket may be slightly tilted and the bone may be thin and there is one small spot that looks like a tear but over all it is a good looking hip it is pretty confusing. on a good not i got my hair cut today. tired of brushing it I also fell on a dog toy tuesday night ad sprained my wrist I think not going to the doc for official diagnosis it will go own its own if not than i guess it just will hurt. pretty much used to pain and tired of doctors so that is that for me