The beginings of easter lol

Well I had a fun night last night. My three year old niece Faith and I decorated easter eggs. It was honestly a fun time but I was the one who made the mess lol we wer worried about faith spilling the dye not auntie did that one lol. We made eggs with faces and puff paint on them I want to get some pictures of them to put on here before they aree eaten as deviled eggs they will not last ling after that point. i hope you and Malayna have a great easter as well. Can't wait to post pics of the little girl's and little Man's baskets better yet their shocked faces lol

just got some awsome news

i am really happy right now. i have a best friend who is in a group home and i have been talking with her mom lately because she has been sick and she is comming home for the weekend so I may get to see her very happy news yes it is the one on here in the chair my best best bud ever love her so much

update on the past week

this week has been fairly lax. No appointments for the rest of the month except the weekly with my counselor to talk about things and deal with all of this stuff. such a relief to have nothing to be uptight about.
Last night was sort of an interesting night for me. I have been wondering if some of my pain could be due to my spasticity and tried to do My PT to see If it would help. I know before anything more is said I should do it regularly but any way i haven't been because when the hip pain started i was just ending PT for back pain and it did help but then the hip started hurting and it has not ended.
Well needless t say I can not even begin to stretch my hip to where i am usually able to on the right side. It is not a spastic pull that i get well I do get it but it is a sharp pain that makes me stop not the usual tight feeling. I am used to that and just push past it so i am sort of disappointed because i know for sure now that i am losing valuable range of motion on the side that is supposed to be less spastic and stronger not good. A little nervous as to what the MRI will or will not show. For some reason my issues tend to hide and play games with the doctors. I had gall stones for almost two years before they found them on the third ultrasound and endo for ten years or so lol well that s just how I am feeling today hope all is well with malayna and she does not get her Daddy's cold. Although I bet she shared hers with him and that's why he's not feeling well gotta love those germs

Miley Cyrus - The Climb - Official Music Video (HQ) Video by Miley Cyrus - MySpace Video

Miley Cyrus - The Climb - Official Music Video (HQ) Video by Miley Cyrus - MySpace Video
the video of the climb love this one

CMT : Videos : Collin Raye : Quitters

CMT : Videos : Collin Raye : Quitters
Here's the vidio for quitters

THE CLIMB Lyrics - MILEY CYRUS

THE CLIMB Lyrics - MILEY CYRUS
another song that i really Like I will try and find videos for both to link back to as well

♪ Collin Raye - Quitters Lyrics

♪ Collin Raye - Quitters Lyrics
This is a song that hits home with me every time i hear it i wanted to post the lyrics but instead decided to try and post the link I hope it works. It really reminds me of how life really is with a disability even for ambulatory people

MRI Misery

Well I had the MRI done yesterday. It went OK considering. I had the injection. yeah that hurt like the dickens. I don't think the lidocaine worked at all i felt pretty much every inch or it until they said needles out then my hip was numb yep that's how it goes usually.
After the injection it was smooth sailing yay for that one. i took the lovely valium that my understanding PCP gave me for pre med. It worked like a charm. No spasms that interfered with the scan although i had a few in my feet non in my legs thankfully. It helped with the fear of small spaces too lol I was in complete I don't give a crap mode I loved that part. so it is over with and i am feeling stiff and sore this morning but it is a experience i never want to have again for sure

My day of appointments March 12th

today was not a good day at all. i went to the ObGYn to have my monthly injection of lupron. Again it was another nurse I have never met. she made me take another test yeah pregnancy that is. I was frustrated to say the least. I know for a fact I am not and intend on keeping it that way but supposedly it is the protocol for my lupron so who knows all I know is I will be glad when it is over with. so I got the injection any way and then the nurse finally realized that she needed to change my follow up with the OBGYn to an earlier date because i need to see her before i get any further injections. Needless to say I tried to explain this to them before had but they could not seem to get it lol why does that not surprise me so needless to say a fifteen minute appointment took an hour because as usual i could not pee on command but she was not taking no for an answer.
then after the appointment I had another appointment at three forty five to see my regular PCP. usually those tend to be interesting but this one was fairly easy thankfully. I do not need to go back until l my physical in June yay for that. Well provided I don't get sick between now and then lol that is most likely not possible for me but i am going to try my hardest. Other than that not much to report sorry for the long post just kind of frustrated over all but that's how it is I guess.

more good news on dental

He said that it could take a bit before i started to notice a difference not so much. My jaw still pops and when that happens it is really painful but as far as pain goes it is much better between popping episodes and i have been eating like a pig lol just goes to show what less pain can do lol. I think I may still end up needing a night guard as it is still fairly painful in the morning after clenching durring the night but it is getting better this is goood can't ask for much more when just a year ago i was told that there was nothing that could be done about it because there was not a dentist in the office where i go that deals with TMJ thank god for the dentists offices all combining in biddeford yay for that and thanks dr. Roy.

Dental update

They did My Adjustment today. Not what I was expecting but that's fine it's done now. he said that this one was going to be pictures or something but not what happened. well for those who don't know I can tell you all what an oclusal adjustment is spelling may be off lol.
first they take the paper that has the red dye on it and make you grind your teeth on it to see where the red dye is and then they will grind the pieces of tooth off as needed to ensure that the teeth align appropriately. they do this multiple times to ensure that they get all they need from the teeth. they also make you move your jaw in different directions each time they put the paper into your mouth to get all teeth meeting correctly. the best news of all is this did not require any needles I only felt on pain and that was in a tooth that has a filling so far it seems to be about the same but he said within a week i will start to notice a difference there was slightly less pain this morning yay but not sure weather or not to get really used to it. we know how that is with me lol it takes some time. That's about all for now. I will update when I have more news.

just an update on how today has been

i am so tired today. i did not sleep well at all last night and now have to wait until faith is ready for bed in order to go haha. i got good news i can continue the lupron since I stopped bleeding yay for that. i can handle a week of bleeding just not the pain. Even though the lupron is actually supposed to stop the bleeding totally oh well ill take what i get lol. Not much more to update on. oh dental appointment thursday yay I think lol depending on what they do i guess and how my tactile issues are on that day.

Me with my orthotist after getting my surgery finished lol I needed some serious adjustments. mr ken you are awsome buddy Miss malayna the braces and classes were hard on me lol as ytou can see sheila I did not have my glasses on in the pic but was made to wear the braces unless I wanted more surgery. I still do not wear the glasses bad me bad me

waiting to see the doctor after the cast was cut off. They kept the cast on because they were not sure if I was going to need another one thankfully I did not

another Picture of a picture to sho me agter my tendon transfer surger as this blog was suposed to be dedicated to cP but that changed dramatically so here is one of my battles

pics of me in older times lol

this is sort of a crappy pic of me because my scanner does not woek so i took a pic of the picture but this is me with My best friend angel who as you can see also has CP we were known as trouble 1 and trouble 2 I miss you buddy It stinks that you had to move haven't talked in quite some time

A post to my endometriosis friends

the Month of march is Endometriosis awarness month and even though not many people read this I wanted to post my suport of endometriosis to my blog. As everyone who reads my blog knows that I suffer from endometriosis myself. Because of this condition I have met many very carring people on the internet and most importantly My wonderful OBGYN Jenny. At first I was aprehensive of having her as a doctor because we both have the same name and in the begining it was confusing but that passsed and now she is an important part of my life.

She may not read this ever unless of course I remember to give her the link to my blog but She was different from moment one she believed me when I said that I had pain and from moment one the decisions were left up to me. I was not pressured into doing anything that i was not comfortable with and the surgery was done only with my complete understanding and my final say of yes. i do not regret this surgery or meeting Jenny at all now.

This may be a long post but i want others to understand what this chronic painful condition is like. there are alot of people ot there with Endo who are not diagnosed. I started having all of my issues from the first cycle and they just continued to get worse. I was always in extreme pain with cycles even on the pill. Then toward the end of my battle to get a diagnosis the pill stopped working all together. I was bleeding through basically the entire course of a month except the first week if I was lucky. then in August my primary decided a trip To An OB was warrented because the pain was so bad that I could barley walk. That is how the journey of the Diagnosis of endometriosis began for me.

I had multiple ultrasounds and other testing done to ensure that there was nothing else going on and as matter of fact I am still under the care of an endocrinologist as well. On december fourth i had My Diagnostic Lap done and was surprised to find that I had stage three endo. I do not think the doctor expected it either because she told my aunt and mom that for my age i was at an advanced stage of endo. As of January I started treatment with Depot lupron and the pain has greatly deminished. Although i stilll have bleeds which is uncommon but they last about a week and I will be waiting to figure out if i can finish the treatment or not. I will find out on march 12th weather or not that is possible. it took a long time for a diagnosis as my issues started at the age of thirteen and i was not diagnosed until the age of 23.

all in all i am very greatful for an answer even though the condition has no cure. It can be a very frustrating and difficult condition to deal with. it is very painful and in fact that is the number one symptom of the condition. That is my story of dealing with endometriosis in a nut shell thanks for taking the time to read

Here is a yellow ribbon for endometriosis awarness