an update on everything

Well, I don't really know Even where to begin. It has been pretty crazy around here lol. I went to the docs again on Tuesday because i had a migraine again. It is so frustrating. She did not want to give me medication until she was sure that is what i was having so it took three major headaches in order to get it. I did finally get maxalt the other day and it works well for me.
mom had her follow up on Tuesday as well. she is gaining strength but her oxygen level is still not that great. It is not horrible it stays at 93 percent most of the time right now. She has to go in one month for another x ray.
Well I finally heard back from the orthopedic doctor himself on Monday and he was surprised that i had not been to Boston yet. He is having his secretary look further into the issue. I asked her to but I guess she misunderstood what i wanted from her but now that he gave her the message she called me yesterday and told me that as soon as she knows anything she will be in touch. the pain is gone again for the moment. I am hoping it stays gone this time. I pray that surgery is not scheduled too soon cause i M afraid that I may have to stop the Lupron if I have to have the surgery but i need the surgery as well. It is a touchy situation right now cause i need both treatments. Well that will be up for discussion when the time comes because i forgot to mention the diagnosis to the orthopedic because there is just so much to remember. I am nervous again at just the thought of having to have the trip to Boston. I am not sure if they are going to do the surgery there or not but it is there in the back of my mind. well that's all for me right now.
To sheila I hope the PT goes smoother once you get started otherwise i would go ahead and find another center to. it is odd how they say one thing and then later at their convenience it suddenly changes. I have had that happen so many times it is ridiculous.Almost forgot I also started my add back estrogen to reduce the severity of the Lupron side effects on tuesday. i am not really having any yet except night sweats the neasua only lasted one day and then its been good since. i will probably start getting them soon though cause they usually start toward the end of the first or begining of the second month.

having a bleed after first lupron and the pain is back hoping it is temporary

I have had almost an entire week now of hardly any pain. However yesterday i woke up with he excrutiating cramping again and then went to the bathroom to discover the dreaded bleeding. i am praying that it stops completely after the second shot. I am so nervous because of what has happened to me on the birth control pill. It works for a while and then just stops. I hate the pain and really enjoyed the days of no pain. I was so much happier and alot more active. I had forgotten what it felt like to have no pain in my stomach. i want so badly to forget what the oppain feels like but when it comes it is an all too farmiliar feeling. To sheila, How is malayna feeling/ Mom is getting better slowly but surly. It has been a rough month here for us as well so havg in there and i will be sure to check in freequently best of luck. please do let me know when malayna starts her new PT or gets the eval process down. I love to hear her progress.

My hips

well, the hip issue is getting no better. Now both hips are begining to hurt and I can not get the orthopedic to return any of my calls. I need something done here. if i sit for too long both hips pop when i get up. It is so painful but the best news is my stomach is great. it is so hard to get rid of one pain and then just keep having the hip issues. I think my left hip is starting to catch up because it is working double time because of my right hip. Usually most of my weight bearing is done on my right leg and for the past year i have been putting extra on the left side si this is now turnign to a losing situation. I am just so frustrated. Oh well I guess there just isn't much that can be done right now until i get people to answer calls right. well that is it for my end Sheila mom is home now. How is malayna doing> I hope she is feeling a little better i am still sending her a bunch of extra hugs talk to you all again soon

shocking (good news)

I slept a full night last night. I have not done that in a long time. I needed it though i feel so much better though. it is so different. i did not realize how much i really needed sleep because my sleeping habits have been so messed up since the hip and endometriosis started getting bad. I love my sleep. I Even Love my bed again. i am not tr aped in it anymore lying awake i hated my bed for the past month cause i just laid there and did not sleep and it was a place for me just to stay away from most people because i was not feeling well and did not want to make others upset so i just kept to myself.talk to you all again soon going to bed now to actually sleep it is so amazing lol

update on lupron and how i am fairing after it

Well, my pain just like all of a sudden started to decrease last night. I am hoping it is a permanany thing and not just one of those moments where the pain just kind of gives me a break. i still have not started getting any hotflashes or night sweats really. I think ive had a couple of minor ones though because i am usually one to cover with a blanket from head to toe and lately i have been leaving my feet out because if i cover them i get way too hot. My second injection is february 12. I am dreading the injection but if it is going to provide this relief keep the burn comming. well thats it on my end How are you doing sheila and miss malayna hope all is well haven't seen a coment in a bit i will update again soon oh and still no news on the hip qhich in a way is frustrating but also good because i need the treatment for my endometriosis i just wish the hip would stop with lupron lol don't see that happening.

Yes the side effects have begun

I have been having really bad cramping today. it is a side effect of the lupron injection but that will subside after two weeks then the real fun begins of the hot flashes yipee for that. the pain relief in the end will be worth it. I just preay that the six montgs of treatment work to rid me of this darn pain. I am tired of it and ready for some relief. I have relt sick to my stomach today as well and they said that it could be from the lupron or i may be gitting i virus. I guess it is just a wait and see thing here yay. hey Sheila how is miss Malayna doing? Hope things are going well for you both I gotta go frest some more I will update soon

Lupron started

I got through the first of six shots. It was done around ten this morning and now I'm preparing myself for the period of increased pain and discomfort. Yes this is supposed to happen because of how lupron workws. it stimulates the ovaries to produce alot of hormones and then they drop off dramatically to levels of menopausal women. Thankfully in my case it is temporary and a month or so after i stop the injections my cycles will return.
i also had my urine dip for my UTI redone today and they said it was clear of infection but im not sure because they said that last time and they sent it for culture and it was positive. I think this one is right though i am not having symptoms. I have to go for now i have my nephew today overnight cause my sister went for wisdom teeth out.

good news all around

I am feeling better with my UTI after starting the antibiotics on tuesday. I have another urine dip on the 12th. also they moved my first lupron injection to the 12th at 9;00 AM. they were shocked when i said I would take the nin appointment because i am not a moring person at all. Right now i am at the point that i will take any opening that is closer than the 26th. It is painful and the sooner we start the sooner I can figure out if this is the right treatment for me. I am nervous and yet excited at the same time. I know it is going to be more painful for a bit but i hope after it will make things easier.
I am still really tired though from the lack of sleep when i could not take my pain meds because of the endocrinology appointment. Well that is about it for my good news. It sounds weird but I am satisfied with the day today.

appointment today went well

i had my endocrinology appointment today. it went well. It was really not an appointment that much was done at. He is not concerned with my prolactin levels and unless they are above a 40 on the labs again nothing will be done. I do not need to see him again for a year. i was happy to hear that. One less thing to have to worry about. That is great.
Next appointment as far as I know is on tuesday the 12th for a repeat urine dip easy stuff. hey sheila and Malayna how are you guys doing? has Malayna begun seeing the PT That you mentioned in an earlier post?

urine culture back

Finally, The results are in and i was right again. i have a uTi again on top of the endo pain. gotta love them. I knew there was one but they were like your dip is negative but we will send it out i dont think it will come back with anything you should call the Gyn it is most likely your pelvic stuff. Wrong again it is both. it is so frustrating.
Oh yeah i have my endocrinologist appointment tomorrow. Not looking forward to it but it is another step closer to me being able to start Lupron for my endometriosis so i will go and see what he has to say and how much blood he takes lol. Every doctor that i see lately seems to want that from me. if my blood was made of gold i would be rich lol.

Endometriosis for those who do not know

Endometriosis is apparently a common uterine disorder where cells that act like those of the lining of the uterus grow in places outside of the uterus on the ovaries filopian tubes uterine ligaments and other places.
it is a painful very misunderstood condition. i have apparently been dealing with it for quite some time as the doctors were quite surprised that i already had stage three out of four when they did my Surgery. I was officially diagnosed on December fourth 2009 after a long endless feeling time of telling others that something was wrong and having doctors say well i don't see anything or feel anything I don't think there is anything going on. It is so frustrating.
Well that is a bit on the condition and for those of you who follow regularly I hope this helps to explain it in a clearer view if you need it. i am greartful to have you

good day today despite pain still

i have been home in bed or on the couch most of the weekend because of my pain. i am still having urinary symptoms but i am beginning to think my primary was correct in the fact that it is not a urinary infection as I have not developed a fever . I am still going to call on the results Monday to see if they are in because if it is not an infection than I need to get into the GYn before the 36 to figure this out.
Well onto the good part of my day. I have Had my niece and a friends little girl today and I took them outside to play in the snow. I pulled them in the sled and then just a bit ago I helped both of them play my wii. They had a ball. yes it was hard for me to do but watching their sweet smiling faces mad the pain totally worth it. I love all of the children in my life. They have such a special part of my heart and they keep me going especially my niece. She lives with me as my sister and I both still live home and it is so nice to have her to wake to in the morning. it makes those days that i don't want to get up worth it. For her i am so greatful. i love you Faith. You are auntie's little miracle and you will not read this because you are only two but i want others to know as well.

happy New year

hey, Wishing Sheila and malayna and anyone else who may read a verry happy new year